Category: IVIg

ENT Taking Over

Since my last post, this sinus infection has taken on a whole new level. Between my labs looking like absolute dogshit, and what he visualized yesterday, made me see Hepworth finally come out of his shell. I got called yesterday from Kristen, Hepworth’s practice manager. She told me things are being put into motion. Apologized… Continue reading ENT Taking Over

Yesterday I Felt Like I Was on Fire

On Friday morning, when I woke up. I was met by the usual Charlie Horses in my calves and feet. I waited in bed for about 10 minutes for the spasms to let go so I could get out of bed. The night before was abysmal. Maybe slept for 24 hours total. Kept waking up… Continue reading Yesterday I Felt Like I Was on Fire

Quality of Life

Exhaustion.  Sleeplessness.  Wiped out.  Recovery from the tumor removal has really gotten hard.  Pain still comes and goes, always at the worst times.  I hate to say it, but I really wish that I had more time to recover from the surgery.  I only had 2 real weeks of recovery.  I feel extremely rushed to… Continue reading Quality of Life

Recovering isn’t easy by any measure

Recovering from the surgery has not been easy.  Even though the surgery was 4/20 (almost 4 weeks), its definitely taken its toll on me along with my energy, positivity, and just overall outlook.  Lately I’ve been feeling pretty disappointed.  I was hoping to get some sort of postitive traction with my overall health, however, it… Continue reading Recovering isn’t easy by any measure

Hindsight is always 20/20 & The Social Awkwardness of CVID

Growing up with a hidden disorder wasn’t easy. As I’ve said in previous blog posts, my life has been a rollercoaster.  Being sick all my life has taught me to roll with the punches, and accept the fact that I just get sick a lot. Again, in my youth, it showed itself as recurring strep… Continue reading Hindsight is always 20/20 & The Social Awkwardness of CVID

IVIg Infusion #3

Got to the infusion center promptly @ 8:15am this morning.  As I walked in, the reception area was overwhelmed with patients.  The front desk receptionist looked a little busy.  Main problem being is people don’t do the online check-in, which caused a domino effect of delays today.  I went to the same room I had… Continue reading IVIg Infusion #3

Immunologist Appointment and Infusion #3 Tomorrow

Just wanted to post a small update.  I went to the immunologist today to setup our standing appointments for the rest of the year.  The results from my first, and second infusion were quite positive.  My IgG was at 800 before the 2nd infusion, so this looks promising.  We did speak at length about the… Continue reading Immunologist Appointment and Infusion #3 Tomorrow

Teeth update

Not a fun blog post, or update today. Got my updated estimate for the implants to be surgically installed after the raging infection happened stemming from really bad root canals done in the past. I decided to do single implants for each tooth I am missing for several reasons. The main reason being that it… Continue reading Teeth update