ENT Taking Over

Since my last post, this sinus infection has taken on a whole new level. Between my labs looking like absolute dogshit, and what he visualized yesterday, made me see Hepworth finally come out of his shell. I got called yesterday from Kristen, Hepworth’s practice manager. She told me things are being put into motion. Apologized… Continue reading ENT Taking Over

Yesterday I Felt Like I Was on Fire

On Friday morning, when I woke up. I was met by the usual Charlie Horses in my calves and feet. I waited in bed for about 10 minutes for the spasms to let go so I could get out of bed. The night before was abysmal. Maybe slept for 24 hours total. Kept waking up… Continue reading Yesterday I Felt Like I Was on Fire

Whirlwind of Doctors Once Again

Ok.  Now I have more time to write. Starting about 3 weeks ago, the proverbial shit hit the fan again with my health.  My mouth.  For fucks sake.  It won’t end.  Near the end of May, my mouth was just hurting.  The swallowing issues returned.  The burning mouth.  Everything is coming back again. Since I… Continue reading Whirlwind of Doctors Once Again

Quality of Life

Exhaustion.  Sleeplessness.  Wiped out.  Recovery from the tumor removal has really gotten hard.  Pain still comes and goes, always at the worst times.  I hate to say it, but I really wish that I had more time to recover from the surgery.  I only had 2 real weeks of recovery.  I feel extremely rushed to… Continue reading Quality of Life

Recovering isn’t easy by any measure

Recovering from the surgery has not been easy.  Even though the surgery was 4/20 (almost 4 weeks), its definitely taken its toll on me along with my energy, positivity, and just overall outlook.  Lately I’ve been feeling pretty disappointed.  I was hoping to get some sort of postitive traction with my overall health, however, it… Continue reading Recovering isn’t easy by any measure

ENT follow up #2

Ugh. I don’t even know how to describe how utterly terrible my week has been. Probably the worst week I’ve experienced in a long time.   For the past week, week & a half I have been experiencing sharp stabbing pains where Fred called home. It literally feels like someone is stabbing me repeatedly with… Continue reading ENT follow up #2

Hindsight is always 20/20 & The Social Awkwardness of CVID

Growing up with a hidden disorder wasn’t easy. As I’ve said in previous blog posts, my life has been a rollercoaster.  Being sick all my life has taught me to roll with the punches, and accept the fact that I just get sick a lot. Again, in my youth, it showed itself as recurring strep… Continue reading Hindsight is always 20/20 & The Social Awkwardness of CVID