This morning was rough. Not gonna lie. I woke up at 6:15am, instantly gagging and getting a ton of crud out from my face. I spent a solid 20 minutes of trying to pull it together. The usual garbage came out. No real change there.
The pressure I’m feeling between my ears, behind my eyes, the bridge of my nose and forehead has exponentially worsened. Nothing is helping/working anymore. My face just … hurts.
Work flew by today quick, I left at 1:10pm to make it to my ENT appointment at 2pm. I made it there 5 minutes early. But by 2pm, I wasn’t getting called back. The Dilaudid has worn off. The pain is now at a 9. I just hunched over and started to rub my face like Anies does. I almost put myself to sleep because it’s like when something hurts so much, but at the same time, it feels really good. 30 minutes past and still nothing. At this point I’m used to this. However, they did wedge me into the schedule.
Sarah called me back around 2:40pm. I caught her up where we were at with things. Going through all the symptoms. When she went to scope me, she could barely get up my nose on either side. Everything was extremely inflamed. Lots of webbing and gunk. It hurt so much.
After she was done, I broke down. Told her that for the past month and a half, I’ve been trying to call the nurse line with no response. Told her that infectious disease has tried reaching the office / Hepworth on multiple occasions. I just let it out. All the frustration. The pain is really starting to get to me.
Every morning is a staunch reminder that this won’t go away. It’s reverted back to where it takes me 3 hours every morning to “get it together”. The infection is spreading again. I feel it more and more behind the bridge of my nose, behind my eyes, my orbits/eyebrows/eyelids, my cheekbones, and my frontal sinuses. The “bump” that comes and goes where tumor was removed has been becoming more and more prominent. Then it dissipates. It’s one of the strange symptoms I’ve noticed.
The foul taste/smells I get have become worse again. They come in waves. To the point of gagging / throwing up. The back of my tongue is completely black. Yes. I brush my 6 teeth. The inside of my mouth. Try to do my tongue as far back as I can go without gagging myself. On top of this, I rinse with Chlorahexadine mouth wash. Which is prescription, but does help turn the fire off for a little bit of time.
As I left, she wants me to start using Mupriocin up my nose after the budesonide “shots” I have to do up my nose. It’s so inflamed at this point, nothing helps. Just makes the symptoms calm down for a short period of time.
She promised me that she would talk to Hepworth Tuesday or Wednesday so I guess we will see what really happens. She said that I would either I would hear back from her … or Stephanie (fuck me) regarding surgery. I’m sure I won’t get called. It’s how this goes. CT (stealth) scan of my sinuses is Friday at 9:30am. I am so over being exposed to radiation.
Just delay after delay. You’ve got imaging. It shows infection. I’ve gone through 4 fucking big gun antibiotics, big gun antifungals, even shooting Amphorectin up my sinus didn’t do much.
I’m so fucking tired of this wait and see approach. Yet they aren’t the ones waking up like this. I know I’ve said this many times, I just wish I could transfer what I feel to them for 30 seconds. Watch them disintegrate and beg for it to stop by the time 15 seconds hits. The Dilaudid just takes the peaks away. It’s a pressure that will continue to build. My main concern is losing my eyesight, or it spreading to my brain.
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