What has taken me 47 years to figure out, on my own. The past month has been one of the most forward-motioning things revolving around my life. Since the last ER visit, things were swung into action. I’ve been learning everything about all the issues I’m seeing, treatments, how to do things, etc. No, I am not practicing medicine,… Continue reading Enough
Quick Update
Mayo has officially taken over my case. It’s definitely a fungal infection. I had my 2nd dose of Dupixent and I’m continuing to drop weight. The Posaconazole is doing its job. On Monday I had to initiate the SAJAZIR injection to stop post-Ivig swelling. So its official, Hereditary Angioedema I go to the GP today… Continue reading Quick Update
Probable Cause / I’m Ready
Known Diagnosis’ to Current Factual Things That Happened Bed Bugs Exposure of infectious Diseases ICU During Visit with Father in Minnesota What Afflictions Am I currently under treatment for Deep Seated, subcutaneous/disseminated phaeohyphomycosis by systemic Fungal Infection Left Ear Malfunction Left Ear Infection Common Variable Immunodeficiency / Mast Cell Activation Disorder / Hereditary Angioedema I… Continue reading Probable Cause / I’m Ready
My Kryptonite is “Fun”gus, I’ve Been Awakened
The past few weeks, a lot has happened. It all started with the ENT visit who specializes in my ear on 4.15.2026 with him, and really swung into motion when the ER visit happened. Yes it was Anaphylaxis, but there’s much more now. I have a feeling that what was happening was my immune… Continue reading My Kryptonite is “Fun”gus, I’ve Been Awakened
The Slow Progression of Long-Term Mold Exposure
So I have somewhat touched on this topic previously. But the end of the day, the Chronic Inflammation Response Syndrome I’ve been experiencing since 2017, more towards the beginning of Fall. This was where we both were exposed to toxic mold for at least 6 years, between both apartments at Parc. This was also a… Continue reading The Slow Progression of Long-Term Mold Exposure
What gives me direction in life?
What gives you direction in life? Easy. Fundamental morals which include accountability, ownership, responsibility, dedication, solid immune disorder, hopeful, helpful, selfless, caring, empathetic. Drive to always take the high road, help everyone that deserves it. Send positive energy into the universe. Only take back what I need. Accept failure, try again. Push away the chaos,… Continue reading What gives me direction in life?
Root Cause Analysis
Well, what took almost 47 years to figure out 6 simple answers to the 6 very complex questions I ask myself on a daily basis as I am an engineer, who seeks out truth while applying fact, and learns best practice via trial and error, all while collecting data to present as “my life’s work”,… Continue reading Root Cause Analysis
Aftermath
As per my previous message informing everyone on what/ how an anaphylaxis event starts, and what needs to be done. Part 1 occurred while @ my immunologists office for genetic testing / starting Ruconest for Angioedema. The event was calmed down within 20 minutes of the 30 minute rule. Benedryl/Prednisone first, wait 30 min. If… Continue reading Aftermath
Too Close
Well. It’s really easy to say this. I listened to my body. The “wind up” I referred to almost reached critical mass this morning while I was being evaluated at my immunologists office. I woke up feeling weird. Looked at my disturbances for sleep, was elevated. I got up at the usual 5am. Made a… Continue reading Too Close
Not Good
Had my appointment today with the face/neck/mouth ENT, since I saw my ear ENT back on 4.15. Upon evaluation via endoscope, it was visually discovered that I am currently suffering from a viral infection known as shingles in the inside of my ear, and face and mouth which is an affect from the bacterial/fungal infection.… Continue reading Not Good