Root Cause Analysis

Well, what took almost 47 years to figure out 6 simple answers to the 6 very complex questions I ask myself on a daily basis as I am an engineer, who seeks out truth while applying fact, and learns best practice via trial and error, all while collecting data to present as “my life’s work”,… Continue reading Root Cause Analysis

Published
Categorized as CVID

Aftermath

As per my previous message informing everyone on what/ how an anaphylaxis event starts, and what needs to be done.  Part 1 occurred while @ my immunologists office for genetic testing / starting Ruconest for Angioedema. The event was calmed down within 20 minutes of the 30 minute rule.  Benedryl/Prednisone first, wait 30 min. If… Continue reading Aftermath

Published
Categorized as CVID

Too Close

Well. It’s really easy to say this. I listened to my body. The “wind up” I referred to almost reached critical mass this morning while I was being evaluated at my immunologists office. I woke up feeling weird.  Looked at my disturbances for sleep, was elevated. I got up at the usual 5am. Made a… Continue reading Too Close

Published
Categorized as CVID

Not Good

Had my appointment today with the face/neck/mouth ENT, since I saw my ear ENT back on 4.15. Upon evaluation via endoscope, it was visually discovered that I am currently suffering from a viral infection known as shingles in the inside of my ear, and face and mouth which is an affect from the bacterial/fungal infection.… Continue reading Not Good

Published
Categorized as CVID

It’s been a minute

What should start off as a positive post about everything is better, why I haven’t been posting or writing. I’m just defeated. Tired. The daily pain I feel in my face, mouth, and now sinuses has worn out its welcome. Yup. I said it. What feels like lock jaw has started to get worse every… Continue reading It’s been a minute

Published
Categorized as CVID

1 Year Later ….

The last 2 days have really been hitting me hard. One year ago, I suffered a STEMI heart attack. The arteries that feed my heart were 95% blocked. I survived probably one of the worse types of heart attacks you can have, they don’t call it the widowmaker for nothing. I still remember the weeks… Continue reading 1 Year Later ….

Published
Categorized as CVID

Legal Update

As I was driving home from my Dr visit this week, I got a surprise email. The attorneys that got us out of the lease, contacted me, letting me know that they would be taking on the other portion of the case between me and Parc. They were able to find a medical professional who… Continue reading Legal Update

Published
Categorized as CVID

Reunited with Hepworth and Updates

Can’t begin this post without talking about post-Mayo. This morning I woke up to an email from Dr. Joshi requesting that I come off all antifungals, and that everything seems to be ok. More on that later. Yesterday, I was able to re-establish care with Dr. Hepworth’s office. It’s been 6 months since he split… Continue reading Reunited with Hepworth and Updates

Published
Categorized as CVID

Heading Back from Mayo

The unexpected turn of staying an extra 2 days was a surprise. Dr. Joshi was well worth the visit in the first place. I still can’t believe she got me in front of everyone so quickly. For starters before I go into it, when we rebook our room at the Kahler, we moved to a… Continue reading Heading Back from Mayo

Published
Categorized as CVID

Vampires Strike

This morning started off early already. They pulled quite a bit of blood from me this morning. Looking at the screen, Dr. Joshi ordered a lot of stuff. Some of it was immune related, but she already had the genetics labs pulled. My next appointment with ENT (Ear, Nose, Throat) is this afternoon at 2pm.… Continue reading Vampires Strike

Published
Categorized as CVID