Growing up with a hidden disorder wasn’t easy. As I’ve said in previous blog posts, my life has been a rollercoaster. Being sick all my life has taught me to roll with the punches, and accept the fact that I just get sick a lot. Again, in my youth, it showed itself as recurring strep… Continue reading Hindsight is always 20/20 & The Social Awkwardness of CVID
Category: hypogammaglobulinemia
Educating myself and others about immunity
Today is education day. I’ve started to delve deeply into IVIg and it’s uses with respect to the immune system. In previous posts, there is absolutely a clear indication of a TNFRSF13B mutation within my mother’s side of the family. It affected my sister in the form of GBS. My mom’s brother, Crohns. Again, my… Continue reading Educating myself and others about immunity
Coming to terms with Common Variable Immunodeficiency Disorder (CVID) and fighting for treatment
Coming to terms with having an immunodeficiency has been both a burden and a blessing, and a marathon all wrapped into one. I’ll be quite honest, my life has not been easy to say the least. From a medical standpoint, it has been a train wreck. Like in my earlier posts, you can easily see… Continue reading Coming to terms with Common Variable Immunodeficiency Disorder (CVID) and fighting for treatment
IVIg Approval
Wow, What can I say. I thought that it would take months to get approval from Cigna for my IVIg replacement therapy, but I woke up this morning to an email from my case manager at Cigna that my IVIg replacement therapy was approved. Such a huge weight has been lifted off of my shoulders. … Continue reading IVIg Approval