Category: hypogammaglobulinemia

Enough

What has taken me 47 years to figure out, on my own.  The past month has been one of the most forward-motioning things revolving around my life.  Since the last ER visit, things were swung into action.  I’ve been learning everything about all the issues I’m seeing, treatments, how to do things, etc.  No, I am not practicing medicine,… Continue reading Enough

Hindsight is always 20/20 & The Social Awkwardness of CVID

Growing up with a hidden disorder wasn’t easy. As I’ve said in previous blog posts, my life has been a rollercoaster.  Being sick all my life has taught me to roll with the punches, and accept the fact that I just get sick a lot. Again, in my youth, it showed itself as recurring strep… Continue reading Hindsight is always 20/20 & The Social Awkwardness of CVID

Educating myself and others about immunity

Today is education day.  I’ve started to delve deeply into IVIg and it’s uses with respect to the immune system.  In previous posts, there is absolutely a clear indication of a TNFRSF13B mutation within my mother’s side of the family.  It affected my sister in the form of GBS.  My mom’s brother, Crohns.  Again, my… Continue reading Educating myself and others about immunity

Coming to terms with Common Variable Immunodeficiency Disorder (CVID) and fighting for treatment

Coming to terms with having an immunodeficiency has been both a burden and a blessing, and a marathon all wrapped into one.  I’ll be quite honest, my life has not been easy to say the least.  From a medical standpoint, it has been a train wreck.  Like in my earlier posts, you can easily see… Continue reading Coming to terms with Common Variable Immunodeficiency Disorder (CVID) and fighting for treatment