Immunologist Appointment and Infusion #3 Tomorrow

Just wanted to post a small update.  I went to the immunologist today to setup our standing appointments for the rest of the year.  The results from my first, and second infusion were quite positive.  My IgG was at 800 before the 2nd infusion, so this looks promising.  We did speak at length about the… Continue reading Immunologist Appointment and Infusion #3 Tomorrow

Educating myself and others about immunity

Today is education day.  I’ve started to delve deeply into IVIg and it’s uses with respect to the immune system.  In previous posts, there is absolutely a clear indication of a TNFRSF13B mutation within my mother’s side of the family.  It affected my sister in the form of GBS.  My mom’s brother, Crohns.  Again, my… Continue reading Educating myself and others about immunity

New lab results from Immunoe

The bloodwork done on 3/20/2019 results as follows (Updated both Immunoglobulin and antibody | titer trackers): Immuglobulins      Normal IgA, IgE      Low IgG (subclasses included) & IgM Elevated C-Reactive Protein – High 21.7mg/L  HIV – Negative ANA/IFA – Negative Comp Metabolic Panel – All Normal Full Hepatitis Panel      HBsAg – Negative  … Continue reading New lab results from Immunoe

Coming to terms with Common Variable Immunodeficiency Disorder (CVID) and fighting for treatment

Coming to terms with having an immunodeficiency has been both a burden and a blessing, and a marathon all wrapped into one.  I’ll be quite honest, my life has not been easy to say the least.  From a medical standpoint, it has been a train wreck.  Like in my earlier posts, you can easily see… Continue reading Coming to terms with Common Variable Immunodeficiency Disorder (CVID) and fighting for treatment