IVIg Infusion #3

Got to the infusion center promptly @ 8:15am this morning.  As I walked in, the reception area was overwhelmed with patients.  The front desk receptionist looked a little busy.  Main problem being is people don’t do the online check-in, which caused a domino effect of delays today.  I went to the same room I had… Continue reading IVIg Infusion #3

Immunologist Appointment and Infusion #3 Tomorrow

Just wanted to post a small update.  I went to the immunologist today to setup our standing appointments for the rest of the year.  The results from my first, and second infusion were quite positive.  My IgG was at 800 before the 2nd infusion, so this looks promising.  We did speak at length about the… Continue reading Immunologist Appointment and Infusion #3 Tomorrow

IVIg Infusion Log

5/24/2019 Brand of IVIg:  Octagam 10% Amount Infused: 40g / 400mL Lot # of the IVIg Product: M908B8541 Exp Date: 2/25/21 Infusion Duration:  8:50am – 12:30pm Maximum Infusion Rate:  120mL/hr Side Effects Felt During Infusion:  Fatigue and burning eyes Post Infusion Side Effects:  Mostly just fatigue.  Nothing else really. 5/3/2019 Brand of IVIg:  Octagam 10%Amount… Continue reading IVIg Infusion Log

Educating myself and others about immunity

Today is education day.  I’ve started to delve deeply into IVIg and it’s uses with respect to the immune system.  In previous posts, there is absolutely a clear indication of a TNFRSF13B mutation within my mother’s side of the family.  It affected my sister in the form of GBS.  My mom’s brother, Crohns.  Again, my… Continue reading Educating myself and others about immunity