Whirlwind of Doctors Once Again

Ok.  Now I have more time to write. Starting about 3 weeks ago, the proverbial shit hit the fan again with my health.  My mouth.  For fucks sake.  It won’t end.  Near the end of May, my mouth was just hurting.  The swallowing issues returned.  The burning mouth.  Everything is coming back again. Since I… Continue reading Whirlwind of Doctors Once Again

Quality of Life

Exhaustion.  Sleeplessness.  Wiped out.  Recovery from the tumor removal has really gotten hard.  Pain still comes and goes, always at the worst times.  I hate to say it, but I really wish that I had more time to recover from the surgery.  I only had 2 real weeks of recovery.  I feel extremely rushed to… Continue reading Quality of Life

Immunologist Appointment and Infusion #3 Tomorrow

Just wanted to post a small update.  I went to the immunologist today to setup our standing appointments for the rest of the year.  The results from my first, and second infusion were quite positive.  My IgG was at 800 before the 2nd infusion, so this looks promising.  We did speak at length about the… Continue reading Immunologist Appointment and Infusion #3 Tomorrow