Woke up really early this morning for some odd reason. Unfortunately, I met my wife in the bathroom and she said “I’m running a fever.” I somewhat panicked. “I won’t be able to stay here then” I said to her. So I am crashing at my alternative life partners place until my wife can get… Continue reading IVIg infusion #4 & Frustration
Category: Infusion
IVIg Infusion #3
Got to the infusion center promptly @ 8:15am this morning. As I walked in, the reception area was overwhelmed with patients. The front desk receptionist looked a little busy. Main problem being is people don’t do the online check-in, which caused a domino effect of delays today. I went to the same room I had… Continue reading IVIg Infusion #3
Immunologist Appointment and Infusion #3 Tomorrow
Just wanted to post a small update. I went to the immunologist today to setup our standing appointments for the rest of the year. The results from my first, and second infusion were quite positive. My IgG was at 800 before the 2nd infusion, so this looks promising. We did speak at length about the… Continue reading Immunologist Appointment and Infusion #3 Tomorrow
IVIg Infusion #2
Well. Got my second infusion in the books today. The infusion center was a little behind, so I started somewhat late, however, once I got my room, I wanted to push myself as far as getting to 120mL/hr for the infusion rate. Going between 60 to 90 I got a weird left-sided headache. They backed… Continue reading IVIg Infusion #2
What doesn’t kill you, only makes you stronger
The infinite wisdom that my mom used to tell me growing up on a daily basis is starting to punch me in the face every day, and starting to bring light of my ongoing health problems. My mom had a quip for anything and everything. The one that that was very common was “What doesn’t… Continue reading What doesn’t kill you, only makes you stronger
IVIg Infusion Log
5/24/2019 Brand of IVIg: Octagam 10% Amount Infused: 40g / 400mL Lot # of the IVIg Product: M908B8541 Exp Date: 2/25/21 Infusion Duration: 8:50am – 12:30pm Maximum Infusion Rate: 120mL/hr Side Effects Felt During Infusion: Fatigue and burning eyes Post Infusion Side Effects: Mostly just fatigue. Nothing else really. 5/3/2019 Brand of IVIg: Octagam 10%Amount… Continue reading IVIg Infusion Log
IVIg Infusion #1
Well, I guess the snowstorm we got didn’t slow down my first IVIg infusion. Woke up this morning at @ 6:45am just stressed out. I called into the infusion center at 7am, and the answering service said normal start time, I was relieved. We got to the infusion center around 8:15am. I was met by… Continue reading IVIg Infusion #1
Another ENT Visit Today, Infusion tomorrow
With the crappy snowstorm thats hitting us in Denver right now, I got a call last night from the infusion center that my infusion might not happen. I shot a message off to my immunologist last night with a backup game plan should the infusion get canceled. The infusion center called me back today and… Continue reading Another ENT Visit Today, Infusion tomorrow
Educating myself and others about immunity
Today is education day. I’ve started to delve deeply into IVIg and it’s uses with respect to the immune system. In previous posts, there is absolutely a clear indication of a TNFRSF13B mutation within my mother’s side of the family. It affected my sister in the form of GBS. My mom’s brother, Crohns. Again, my… Continue reading Educating myself and others about immunity
Coming to terms with Common Variable Immunodeficiency Disorder (CVID) and fighting for treatment
Coming to terms with having an immunodeficiency has been both a burden and a blessing, and a marathon all wrapped into one. I’ll be quite honest, my life has not been easy to say the least. From a medical standpoint, it has been a train wreck. Like in my earlier posts, you can easily see… Continue reading Coming to terms with Common Variable Immunodeficiency Disorder (CVID) and fighting for treatment