My Kryptonite is “Fun”gus, I’ve Been Awakened

The past few weeks, a lot has happened. It all started with the ENT visit who specializes in my ear on 4.15.2026 with him, and really swung into motion when the ER visit happened.  

Yes it was Anaphylaxis, but there’s much more now.  I have a feeling that what was happening was my immune system waking up to fight 1 last time.  The fungal infection is back.  It’s pretty clear.  My dermatologist over the past 6 months has been freezing Seborrheic Keratosis off of my head almost every single bi-monthly appointment. Another thing he did, was inject Kenalog into my face.

It’s all making sense now.  Everyone knows I have a Mohawk.  That requires me to shave my head periodically on the sides.  Every time I would shave my head, shower afterwards, my entire head would just burn.  Hypersensitive.  You could run your finger across the middle of my head, and it was just bumpy like crazy.

So this goes towards the series of events following the septic shock event, which included anaphalaxis.  I immediately got an appointment with my immunologist.  Didn’t care where I had to go see him, I needed to see him immediately.  I managed to get an appointment with him.

This was probably the most pivotal appointment I’ve ever had with any doctor.  I shared everything, my notes, my labs, my medical journal.  I was there for over 2 hours.  As we discussed, the focused on the  Interleukin system.  This is the system which comprises your “communication” with respect to your immune system.  It’s important to know that.

Because the B Cells I produce, trigger that all the time with false flags, or not at all.  The IVIG I receive from plasma donors also triggers it, in a good way.  With all of this going on, and the immense amount of swelling I have, I told Dr. Sarid my theory.

My extremely broken immune system + IVIG B Cells + Mast Cell Activation + Probable Heriditary Angioedema + Fungal Infection = Where I’m at

The one interesting thing out of all of this, is that the ketamine I’m taking to help with a bunch of stuff, the chemical properties of Ketamine directly impact the interleukin system.  It’s science.  Ketamine is widely used during general anesthesia.  If you had a major surgery, most likely it could have been apart of the anesthesia.  

Surgical Settings: Low-dose ketamine suppresses the increase of serum IL-6, IL-1β, and TNF-α.  In other words, it disables my bodies ability to misfire.  During the ER visit, I can assure you a cytokine storm absolutely happened, which is why I had them use Ketamine to slam on the brakes.

So knowing this all, my appointment was originally for me to switch to Dupixent.  Which does EXACTLY what ketamine does.  It helps with the interleukin pathway.  This is why I love Dr. Sarid, he allows me to participate in my care.  Every choice is mine, he never tells me what to do, because he knows I am watching myself and I am not the typical patient.

Additionally, we spoke about Hereditary Angioedema.  We’ve been dancing around that topic from the past 2 visits, but after that ER visit, it’s now a priority.  As we both sat there literally drawing out a plan of attack, we both decided to take a snapshot of me in time. SAJAZIR is one of the emergency intervention drugs for Angioedema, the other is called Ruconest.  Once I made the decision to go with SAJAZIR, he immediately left the room and started the process to contact Cycle Vita for what’s known as a bridge kit.  This is a prescription, however, because of the nature of this, the manufacturer sends out a kit that includes 2 30mg syringes. 

Every single test he can order vs my broken body.  But the key piece here, is that the only thing in me at that time, was just the IVIG I got last.  Which in reality, helps.  Because it shows where my body was at with someone else’s borrowed immune system.  All of those labs are still pending.

Right afterwards, I got 600mg of Dupixent.  Then filled out all the patient assistance forms for Dupixent, as well as the other drug SAJAZIR.  Sarid came back in, and assured me that he was going to sit with me the entire hour, documenting everything.  And I mean everything.  I am not experimenting, I’m literally collecting data.  Highlights, critical things that show if this happens or if I take this, or do this, this is the result.  I am literally doing research on myself.

Once we got all the documentation squared away, that was it.  Sort of a marathon. The car ride home however, things got really weird.  My body started to feel much more relaxed.  Calm.  Kinda like jumping into a frozen lake.  As time went on throughout the day, things got even weirder.  I could feel this “grip” on me loosening.  That’s literally what its felt like this entire time.  Asphyxiation.  Can’t move, can’t breathe, can’t talk.  I spent the rest of the day making arrangements for the Dupixent, and the SAJAZIR.

The next morning I woke up, and my usual routine of meet my mouth on fire was gone.  No sense of urgency to stumble around towards the bathroom for my Dilaudid.  I couldn’t believe it.  For the first time in 10 years, I woke up w/o pain.  

From my visit with Dr. Hepworth, I also got the posaconazole for the fungal infection.  This is a power anti-fungal medication, which is 1 step below Aphotercin.  That shits like drinking bleach.  It’s extremely toxic.  So right now everything is starting to line up.  Which is all I’ve wanted.  I just want to get better. I want off the pain killers. I want my body and mind to be calm.

At the same time, last week I met with my Osteopath Dr. Sean Naylor. The guy that helped me get rid of Lymes disease. Which funny enough, the last time I saw him was the day of my Widowmaker heart attack. I needed him on board for the other side of this, eastern medicine. 

Functional medicine is real. It helped me immensely. So with that being said, I got a lot of supportive things on board, plus additional actual prescriptions to use at certain points of a protocol he designs. This visit cost me $600 alone. 

For the next 2 months, this is the protocol I follow in conjunction with the great work done by Sarid, and Hepworth:

Started Phase 1 Suppliments:

MC-BB-1 – 1 dropper twice daily in water. Tincture.

VIRACID – 1 capsule twice daily. Vitamins.

Undecylenic Acid – 4 capsules twice daily. Supportive antifungal

Pau’ D’arco – 1 dropper twice daily. Candidia Overgrowth

Phase 2 Suppliments

A-BART – Bartonella Combat

Caprylic Acid – Antifungal

What I’m doing is setting the stage for the final battle with this fungal infection. This infection was acquired in IL, but fueled more and more by what is an already overloaded / underpowered / helpless immune system, that when provoked, attacks.

So with all that, here is the primary amount of medication I’m going to be doing going forward:

20mg Xalrelto – Blood thinner (Heart Stents)

100mg Metropolol ER – Beta Wave Blocker (Heart Stents)

40mg Rosuvastatin – Cholesterol Preventative (Heart Stents)

10mg Ambien – Gotta sleep 🙁

8mg Dilaudid ER – Once daily. Pain control.

8mg Dilaudid IM – As needed for breakthrough pain

10mg Claritin – H1 Antagonist twice a day (MCAS)

25mg Hydroxyzine – H1 Anti-Histamine twice a day (MCAS)

300mg Posaconazole ER – Potent anti-fungal (Systemic Fungal Infection)

The place where it mostly all was that I knew about.  The entire wall on the patio was messed up. But get this, nobody is wearing hazmat gear. No PPE. No nothing. They didn’t even rip anything out. They just emptied things out. 10000000 % Negligence

100mg Ketamine SC – Microdosed weekly to ensure MCAS is silent, and for pain

300mg Dupixent – AFRS, Chronic Spontaneous Urticaria

55g Octagam 10% IVIG – Humoral Immunoglobulin every 3 weeks via Port

And now for the “fun”gus problem. No, this has not been fun, I can assure you. Back in 2011, we moved into an apartment together. But soon after, the weird acne started to happen on my face. Strange rashes. Hair not staying attached.

In 2014, we moved out. I was done with that property. It was a shithole. When I went to pull the bed away from the wall, I was greeted by this lovely thing:

If only I sampled it, I’d have so much more data to share. 

When we moved to Denver in 2017:

Air conditioner needed to be replaced. We moved out of that place the minute the lease was up. Stay away from Sierra Crest. 2 months into us moving in, the entire bathroom ceiling came crashing down on me.

Now keep in mind, this was the bathroom where I would just blackout / drop to the floor. That’s how I dislocated my ribs 🙁

In 2017, next place (which when everything went to shit). Not even 2 weeks after we moved in, the upstairs neighbors water heater exploded. Sending water everywhere.  Did they fix anything?  Nope. It was shortly thereafter, the asphyxiation began. 

For clarity, FUCK PARC AT CHERRY CREEK.  This place should be condemned.  I am seriously considering legal action.  I ended up having to enact the Warranty of Habitability clause of the lease to save my families lives, including mine.  This put me approximately $300k in debt, so many lost years of my life.  Actually broke my heart…. 

If you are an attorney looking for a super easy slam dunk case, call me.  This made my wife sick, my 3 (at the time) fur babies constantly ill.  We lost so much time, money, and even all our stuff.  Yes.  I had to abandon the bed, couch, everything.  I couldn’t risk contaminating our new place with anything that could’ve carried spores over.  This shit is absolute kryptonite.  It’s insane to think this happened, but it did, I lived through this in the horrors of ER visits and my immune system going into complete overload. 

Their “remediation” team they sent to “fix” the problem were a ton of contractors that had no idea what they are doing. I watched in absolute horror from the ICU.  Fresh out of surgery.  I had a widowmaker heart attack due to all this mold.  That’s the ONLY reason.

We found this about 4 months after the water heater exploded.  I informed the leasing office via email:

Screenshot

Of course they just sent some “maintenance” guy out.  He just painted over it…. They didn’t remove anything.  No remediation.  At all.  There were 4 different occurrences where they had to come into our apartment due to the upstairs neighbor overflowing his sink, tub, kitchen sink constantly.  

It actually started a small feud between myself and the dipshit upstairs.  At this point, my sense of smell is gone.  I cannot smell anything.  However, there’s one smell that I can smell.  Since I could smell his nasty apartment, I decided to get out of the building due to all the issues.  However, this is now COVID.  Everything is on lockdown.  So in 2021, we moved to an EVEN WORSE place.

At this point my body is starting to give up.  I’m constantly feeling like crap.  I couldn’t move.  Walk.  Ended up getting a handicapped placard (Yeah that’s embarrassing).  But now I’m starting to throw clots.  I got hospitalized for a Pulmonary Embolism.  4-5 differing DVT’s because of all the IV antibiotics.  My body is getting ready to explode at this point.  

Then the next phase came, kidney stones.  From 2017 to 2026, I have had to have at least 4 major stones removed from my kidneys, countless stones.  My wife remembers the one that hit while we were driving back from Colorado Springs.  I’ve never before had a kidney stone in my life.  Let alone the serious health problems I’m facing now.

Now being 2021, COVID still is a thing, I am now trapped in a place, that every day, by every hour, by every minute, is slowly asphyxiating me.  Yes.  I know what that means.  Yes I know how that feels, it’s the most terrifying feeling in the world.  I spun to infectious diseases from 2021-2023 trying to get help.  Even traveling to Mayo for help.  I just couldn’t believe it.  Dismissal after dismissal.  Also during this time, I am going to both an Oral Surgeon to help with my jaw pain, and my dermatologist for the weird lesions that would continue to come out of my face.  

2022 came, the mold situation is just worse.  Got hospitalized for saddled PE’s.  Which then turned into the pain in my head just getting to that point of “I can’t take it anymore”.  It was the thing behind my ear.  Where my tumor was taken out.  The pain was inescapable.

Dr. Lupo broke open the left side of my head.  Found severe evidence of an infection.  It was bad.  Almost like scar down tissues.  Seriously chronic inflammation.  I would’ve thought that would’ve been it.  We finally got the thing.  I was so wrong.

Not even 7 months, it came back in 2023, and holy shit did it ever.  The pain was 20/10.  I got an appointment w/ Lupo, packed my hospital bag.  The rest you know.

The biggest thing that I got out of this.  Was ketamine.  This is the drug that saved my life.  Its anti-inflammatory properties is unparalleled.  Yes, it’s a psychedelic, however, it’s one that is super beneficial.  For me, it shuts down the Interleukin pathways.  The crux of the issue.

The final nail in the coffin, was when Dr. Hepworth pulled out a Fungal Abscess out of the location where the osteoma was.  It tested positive for Alternaria Alternata.  Here’s a good case study that matches what I’ve been detailing with for 5+ years.  This is what kickstarted me testing the air quality.  I wasn’t surprised.  At all.

Until the Widowmaker happened.  Yes.  If you’ve been reading along with me for awhile, but for those of you who are reading for the first time, I was 45.  And I survived a Widowmaker.  Nov 28th, 2023.

But what changed everything was when Dr. Chauhan reemed the shit out of infectious diseases, on the phone, in cath lab.  Me sitting on the table.  That pushed infectious disease to continue to play around.  They did whatever it took to avoid a lawsuit, because I let them have it when I was in the ICU.

So while I am in the ICU, I am watching in absolute horror.  The “remediation” crew “cleaning” up the hazardous conditions.  Watched the whole thing happen, through our pet cams.

Firstly, this was our kitchen.  I blacked out several times in the kitchen.  Constantly.  Aggie knows, she saw me just go straight down.

This is why you do not trust anyone’s word here’s the “mold remediation team”:

We got the fuck out of hell.  A nightmare.  This place almost killed me, literally.  It made my babies sick.  It made Aggie have to move all by herself.  Fuck this place. Here’s the haunting video of what hat place looked like. You can’t see it. But that whole place tried to kill me. This traumatizing experience, plays over and over in my head. So please, be kind to me.

When we were told it was “safe” to return.  It wasn’t.  Within 30 seconds, of walking in the door, I almost went down.  Thankfully I got a Papr system.  This is what’s literally keeping me alive in this picture.

Lastly. This was the most terrifying, trauma inducing nightmare everyone could ever imagine. Now knowing what I didn’t know back then. I am literally suffocating in this video. I can’t breathe. My heart is starting to give up. I got near the mold and it dropped me to the floor. You can see me panicking walking around all while my whole body is on fire with the biggest allergic reaction. . This is truly horrific.

In 2024, Our last stay @ Mayo, we stayed at the Kahler Hotel, which is literally across the street from the main Mayo campus in Rochester, MN.  The minute I got into the room, something wasn’t immediately right.  And yep you guessed it.  Another exposure.  

Exposure symptoms are wild.  It starts off with my throat.  Almost immediately.  Then my skin will just start crawling.  Like I’m on fire.  It’s when I sense this, I perk up and say “There’s mold here”.  I guess that’s my new superpower.  Mold Detector.

The room across from us had this in the window:

Literally not even in the same room.  Just the vicinity.  I’m having an allergic reaction just looking at this….

All for now.

John


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Categorized as CVID