Recovering from the surgery has not been easy. Even though the surgery was 4/20 (almost 4 weeks), its definitely taken its toll on me along with my energy, positivity, and just overall outlook. Lately I’ve been feeling pretty disappointed. I was hoping to get some sort of postitive traction with my overall health, however, it feels like I’m just sitting here spinning my wheels.
After trying to get the ENT to see me, after a week of not feeling so good, just back to where I always was… antibiotics & steriods… I just feel miserable most of the time now. I feel somewhat sick to my stomach, on top of that, just really strange feelings where Fred was. I know that the type of surgery wasn’t “easy” by any measure, however, I am still hopefull that time will help me get through this. The problem is the swelling under my left jaw along with more swelling along the side of my face where the parotid gland is. The other problem is where the old Mucoceles were removed. At times it just feels like I’m being bitten by 100,000 fire ants, my lip goes numb, and I keep getting weird feelings in the back of my throat.
I big part of me just wants to be “normal” again, however, I doubt I will see nowhere anytime soon :(. The sad truth here is, that with time things will help, however, I have a feeling that we are not done with my face. I almost want to think that my salival glands will have to come out next. From my ear to my chin, its just irritated, and sore. Again, I just want to feel better. The bad taste keeps coming and going, I would assume there is something in the glands causing this… Maybe when I popped my cysts? Who knows at this point.
Getting proper sleep has also become a problem again. Whether its the pain waking me up, noise, or what have you, I’m just not getting the sleep I used to get. Before? I would just go out cold. Nothing could wake me up. You could literally drive a semi through a room and I wouldn’t care. As for now? Any little thing wakes me up. In a previous job I was required to be on call. I slept through calls in the beginning, something I was never accustomed to doing. The smallest sounds just immediately pull me out of bed, but as of late, I think a lot of it is due to the post op pain, and whatever the hell is going on with the salivary glands.
Overall I think I am feeling better, however, with everything else that’s been going on lately, it just seems like this is going to take an eternity to get better. Having immune system problems I think is probably the worst thing anyone could ever have. I am very thankful that I found someone to finally listen to me, so that I can get the treatment I need to feel better… its just not at the pace I was hoping. The first couple of IVIg infusions gave me energy, but perhaps that was a placebo effect, as the last IVIg infusion I had left me really tired, achy, and just not feeling well. Maybe it was something related to the batch? Dunno.
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