Well. Got my second infusion in the books today. The infusion center was a little behind, so I started somewhat late, however, once I got my room, I wanted to push myself as far as getting to 120mL/hr for the infusion rate. Going between 60 to 90 I got a weird left-sided headache. They backed… Continue reading IVIg Infusion #2
Category: IVIg
What doesn’t kill you, only makes you stronger
The infinite wisdom that my mom used to tell me growing up on a daily basis is starting to punch me in the face every day, and starting to bring light of my ongoing health problems. My mom had a quip for anything and everything. The one that that was very common was “What doesn’t… Continue reading What doesn’t kill you, only makes you stronger
ENT | Surgery | IVIg Update
Before I get into the details, I would just like to stop, and say this. The myriad of ailments that I have had my entire life, between the teeth issues, and cystic acne, recurring infections have been literally pointed out and solved faster at Immunoe than anywhere else. I would just like to thank both… Continue reading ENT | Surgery | IVIg Update
IVIg Infusion #1
Well, I guess the snowstorm we got didn’t slow down my first IVIg infusion. Woke up this morning at @ 6:45am just stressed out. I called into the infusion center at 7am, and the answering service said normal start time, I was relieved. We got to the infusion center around 8:15am. I was met by… Continue reading IVIg Infusion #1
Another ENT Visit Today, Infusion tomorrow
With the crappy snowstorm thats hitting us in Denver right now, I got a call last night from the infusion center that my infusion might not happen. I shot a message off to my immunologist last night with a backup game plan should the infusion get canceled. The infusion center called me back today and… Continue reading Another ENT Visit Today, Infusion tomorrow
Fever, Pain, and Fatigue OH MY!!!!
My three most favorite non-favorite friends have been basically hanging out for a year now. Feels like I’m 80. What can I say, I am just wiped out all the time. I sleep, but feels like I got like an hour. I’m just exhausted. My body has put up with this for way too long,… Continue reading Fever, Pain, and Fatigue OH MY!!!!
Educating myself and others about immunity
Today is education day. I’ve started to delve deeply into IVIg and it’s uses with respect to the immune system. In previous posts, there is absolutely a clear indication of a TNFRSF13B mutation within my mother’s side of the family. It affected my sister in the form of GBS. My mom’s brother, Crohns. Again, my… Continue reading Educating myself and others about immunity
Yesterday Sucked, Today Sucks
Yesterday was a bad day for me. On top of writing the post reliving 2018, and just the over all pain, pressure, fatigue, and just inability to really do much got to me. Patience is something that my mother taught me to have, however, that’s being challenged from all angles lately. I am taking Vicodin… Continue reading Yesterday Sucked, Today Sucks
ENT Appointment CT & MRI Results for sinus issues
Just got back from my ENT’s office to sit down and review both the MRI and CT scans that were done last week with my ENT’s NP. To summarize: I have a left frontal osteoma with chronic sinusitis. The osteoma is roughly the size of a golf ball. Both Maxillary and ethmoid sinuses have a… Continue reading ENT Appointment CT & MRI Results for sinus issues
Finding commonality within a sibling rivalry
Growing up with a sibling comes with the typical bickering that you would expect siblings to have. Fighting over stupid things, arguing, just being siblings. Over the years my relationship with my sister has evolved dramatically. My sister is an amazing woman, and strong. Does she have her faults? Yes. As do I. Nobody is… Continue reading Finding commonality within a sibling rivalry