Before I get into the details, I would just like to stop, and say this. The myriad of ailments that I have had my entire life, between the teeth issues, and cystic acne, recurring infections have been literally pointed out and solved faster at Immunoe than anywhere else. I would just like to thank both… Continue reading ENT | Surgery | IVIg Update
IVIg Infusion Log
5/24/2019 Brand of IVIg: Octagam 10% Amount Infused: 40g / 400mL Lot # of the IVIg Product: M908B8541 Exp Date: 2/25/21 Infusion Duration: 8:50am – 12:30pm Maximum Infusion Rate: 120mL/hr Side Effects Felt During Infusion: Fatigue and burning eyes Post Infusion Side Effects: Mostly just fatigue. Nothing else really. 5/3/2019 Brand of IVIg: Octagam 10%Amount… Continue reading IVIg Infusion Log
IVIg Infusion #1
Well, I guess the snowstorm we got didn’t slow down my first IVIg infusion. Woke up this morning at @ 6:45am just stressed out. I called into the infusion center at 7am, and the answering service said normal start time, I was relieved. We got to the infusion center around 8:15am. I was met by… Continue reading IVIg Infusion #1
Another ENT Visit Today, Infusion tomorrow
With the crappy snowstorm thats hitting us in Denver right now, I got a call last night from the infusion center that my infusion might not happen. I shot a message off to my immunologist last night with a backup game plan should the infusion get canceled. The infusion center called me back today and… Continue reading Another ENT Visit Today, Infusion tomorrow
Fever, Pain, and Fatigue OH MY!!!!
My three most favorite non-favorite friends have been basically hanging out for a year now. Feels like I’m 80. What can I say, I am just wiped out all the time. I sleep, but feels like I got like an hour. I’m just exhausted. My body has put up with this for way too long,… Continue reading Fever, Pain, and Fatigue OH MY!!!!
Educating myself and others about immunity
Today is education day. I’ve started to delve deeply into IVIg and it’s uses with respect to the immune system. In previous posts, there is absolutely a clear indication of a TNFRSF13B mutation within my mother’s side of the family. It affected my sister in the form of GBS. My mom’s brother, Crohns. Again, my… Continue reading Educating myself and others about immunity
Yesterday Sucked, Today Sucks
Yesterday was a bad day for me. On top of writing the post reliving 2018, and just the over all pain, pressure, fatigue, and just inability to really do much got to me. Patience is something that my mother taught me to have, however, that’s being challenged from all angles lately. I am taking Vicodin… Continue reading Yesterday Sucked, Today Sucks
Advocating for yourself and the lack of care you get
This post will focus on the disappointing experiences I’ve gone through to get to having a proper diagnosis. In order for you to get the help you need, don’t put 100% faith in the American medical system. Most of what I’ve learned over the past 2 years, most doctors these days are checked out, and… Continue reading Advocating for yourself and the lack of care you get
New lab results from Immunoe
The bloodwork done on 3/20/2019 results as follows (Updated both Immunoglobulin and antibody | titer trackers): Immuglobulins Normal IgA, IgE Low IgG (subclasses included) & IgM Elevated C-Reactive Protein – High 21.7mg/L HIV – Negative ANA/IFA – Negative Comp Metabolic Panel – All Normal Full Hepatitis Panel HBsAg – Negative … Continue reading New lab results from Immunoe
ENT Appointment CT & MRI Results for sinus issues
Just got back from my ENT’s office to sit down and review both the MRI and CT scans that were done last week with my ENT’s NP. To summarize: I have a left frontal osteoma with chronic sinusitis. The osteoma is roughly the size of a golf ball. Both Maxillary and ethmoid sinuses have a… Continue reading ENT Appointment CT & MRI Results for sinus issues