Sinus Surgery Date Confirmed | Fred’s Eviction Notice Served

Hey everyone, I received word this afternoon that the tumor in my head must come out immediately, and that my immune system therapy (might/might not) happen tomorrow, however, I have made the decision to move ahead regardless of getting the IVIg or not.  Below is the CT scan of starting at the upper portion of… Continue reading Sinus Surgery Date Confirmed | Fred’s Eviction Notice Served

Awaken

This song sums up the literal war I have been fighting for the past 2 years to survive through several rounds of sepsis, hospitalizations, crippling pain, and pushing hard for the answers I needed. I’ve come to realize that it’s now become my time to Awaken and push hard to the finish.  Funny, comes from… Continue reading Awaken

What doesn’t kill you, only makes you stronger

The infinite wisdom that my mom used to tell me growing up on a daily basis is starting to punch me in the face every day, and starting to bring light of my ongoing health problems.  My mom had a quip for anything and everything. The one that that was very common was “What doesn’t… Continue reading What doesn’t kill you, only makes you stronger

ENT | Surgery | IVIg Update

Before I get into the details, I would just like to stop, and say this.  The myriad of ailments that I have had my entire life, between the teeth issues, and cystic acne, recurring infections have been literally pointed out and solved faster at Immunoe than anywhere else.  I would just like to thank both… Continue reading ENT | Surgery | IVIg Update

IVIg Infusion Log

5/24/2019 Brand of IVIg:  Octagam 10% Amount Infused: 40g / 400mL Lot # of the IVIg Product: M908B8541 Exp Date: 2/25/21 Infusion Duration:  8:50am – 12:30pm Maximum Infusion Rate:  120mL/hr Side Effects Felt During Infusion:  Fatigue and burning eyes Post Infusion Side Effects:  Mostly just fatigue.  Nothing else really. 5/3/2019 Brand of IVIg:  Octagam 10%Amount… Continue reading IVIg Infusion Log

Another ENT Visit Today, Infusion tomorrow

With the crappy snowstorm thats hitting us in Denver right now, I got a call last night from the infusion center that my infusion might not happen.  I shot a message off to my immunologist last night with a backup game plan should the infusion get canceled.  The infusion center called me back today and… Continue reading Another ENT Visit Today, Infusion tomorrow

Educating myself and others about immunity

Today is education day.  I’ve started to delve deeply into IVIg and it’s uses with respect to the immune system.  In previous posts, there is absolutely a clear indication of a TNFRSF13B mutation within my mother’s side of the family.  It affected my sister in the form of GBS.  My mom’s brother, Crohns.  Again, my… Continue reading Educating myself and others about immunity