I’m really sorry that I haven’t had more time to do this lately, as things seem to be spinning back out of control again. I’m back out on short term disability again… Things have gotten worse with my face and my neck. For starters, I’ve lost 2 more teeth. The upper tooth (#15) was removed… Continue reading A long overdue blog post
Ongoing Problems
With Fred out, the majority of the pain and discomfort and overall shittiness I was feeling is gone for the most part. Prior to the surgery, I have been complaining to my ENT about swallowing issues and swelling in the left portion of my face/jaw/neck. This has been a recurring problem that just won’t go… Continue reading Ongoing Problems
IVIg infusion #4 & Frustration
Woke up really early this morning for some odd reason. Unfortunately, I met my wife in the bathroom and she said “I’m running a fever.” I somewhat panicked. “I won’t be able to stay here then” I said to her. So I am crashing at my alternative life partners place until my wife can get… Continue reading IVIg infusion #4 & Frustration
Quality of Life
Exhaustion. Sleeplessness. Wiped out. Recovery from the tumor removal has really gotten hard. Pain still comes and goes, always at the worst times. I hate to say it, but I really wish that I had more time to recover from the surgery. I only had 2 real weeks of recovery. I feel extremely rushed to… Continue reading Quality of Life
Recovering isn’t easy by any measure
Recovering from the surgery has not been easy. Even though the surgery was 4/20 (almost 4 weeks), its definitely taken its toll on me along with my energy, positivity, and just overall outlook. Lately I’ve been feeling pretty disappointed. I was hoping to get some sort of postitive traction with my overall health, however, it… Continue reading Recovering isn’t easy by any measure
ENT follow up #2
Ugh. I don’t even know how to describe how utterly terrible my week has been. Probably the worst week I’ve experienced in a long time. For the past week, week & a half I have been experiencing sharp stabbing pains where Fred called home. It literally feels like someone is stabbing me repeatedly with… Continue reading ENT follow up #2
Hindsight is always 20/20 & The Social Awkwardness of CVID
Growing up with a hidden disorder wasn’t easy. As I’ve said in previous blog posts, my life has been a rollercoaster. Being sick all my life has taught me to roll with the punches, and accept the fact that I just get sick a lot. Again, in my youth, it showed itself as recurring strep… Continue reading Hindsight is always 20/20 & The Social Awkwardness of CVID
IVIg Infusion #3
Got to the infusion center promptly @ 8:15am this morning. As I walked in, the reception area was overwhelmed with patients. The front desk receptionist looked a little busy. Main problem being is people don’t do the online check-in, which caused a domino effect of delays today. I went to the same room I had… Continue reading IVIg Infusion #3
Immunologist Appointment and Infusion #3 Tomorrow
Just wanted to post a small update. I went to the immunologist today to setup our standing appointments for the rest of the year. The results from my first, and second infusion were quite positive. My IgG was at 800 before the 2nd infusion, so this looks promising. We did speak at length about the… Continue reading Immunologist Appointment and Infusion #3 Tomorrow
Teeth update
Not a fun blog post, or update today. Got my updated estimate for the implants to be surgically installed after the raging infection happened stemming from really bad root canals done in the past. I decided to do single implants for each tooth I am missing for several reasons. The main reason being that it… Continue reading Teeth update