Author: john

Another ENT Visit Today, Infusion tomorrow

With the crappy snowstorm thats hitting us in Denver right now, I got a call last night from the infusion center that my infusion might not happen.  I shot a message off to my immunologist last night with a backup game plan should the infusion get canceled.  The infusion center called me back today and… Continue reading Another ENT Visit Today, Infusion tomorrow

Educating myself and others about immunity

Today is education day.  I’ve started to delve deeply into IVIg and it’s uses with respect to the immune system.  In previous posts, there is absolutely a clear indication of a TNFRSF13B mutation within my mother’s side of the family.  It affected my sister in the form of GBS.  My mom’s brother, Crohns.  Again, my… Continue reading Educating myself and others about immunity

Advocating for yourself and the lack of care you get

This post will focus on the disappointing experiences I’ve gone through to get to having a proper diagnosis.  In order for you to get the help you need, don’t put 100% faith in the American medical system.  Most of what I’ve learned over the past 2 years, most doctors these days are checked out, and… Continue reading Advocating for yourself and the lack of care you get

New lab results from Immunoe

The bloodwork done on 3/20/2019 results as follows (Updated both Immunoglobulin and antibody | titer trackers): Immuglobulins      Normal IgA, IgE      Low IgG (subclasses included) & IgM Elevated C-Reactive Protein – High 21.7mg/L  HIV – Negative ANA/IFA – Negative Comp Metabolic Panel – All Normal Full Hepatitis Panel      HBsAg – Negative  … Continue reading New lab results from Immunoe

ENT Appointment CT & MRI Results for sinus issues

Just got back from my ENT’s office to sit down and review both the MRI and CT scans that were done last week with my ENT’s NP. To summarize: I have a left frontal osteoma with chronic sinusitis.  The osteoma is roughly the size of a golf ball.  Both Maxillary and ethmoid sinuses have a… Continue reading ENT Appointment CT & MRI Results for sinus issues

Finding commonality within a sibling rivalry

Growing up with a sibling comes with the typical bickering that you would expect siblings to have.  Fighting over stupid things, arguing, just being siblings.  Over the years my relationship with my sister has evolved dramatically.  My sister is an amazing woman, and strong.  Does she have her faults?  Yes.  As do I.  Nobody is… Continue reading Finding commonality within a sibling rivalry

Coming to terms with Common Variable Immunodeficiency Disorder (CVID) and fighting for treatment

Coming to terms with having an immunodeficiency has been both a burden and a blessing, and a marathon all wrapped into one.  I’ll be quite honest, my life has not been easy to say the least.  From a medical standpoint, it has been a train wreck.  Like in my earlier posts, you can easily see… Continue reading Coming to terms with Common Variable Immunodeficiency Disorder (CVID) and fighting for treatment