I don’t know how else to title this one, so I’ll just put up what it is. Around 2pm my phone went off thinking it was just an notification from some annoying app on my phone. As I turned my phone over, lab results from Mayo. Last month based on the recommendation from the immunologist… Continue reading Ataxia Telangiectasia

Wow. All I can say is wow. To my surprise, today I found out that the metal that was lodged into my jaw was infact a 5mm piece of drill bit left by the best periodontist in the world.  I cannot fucking BELIEVE the amount of negligence that has gone on for so long. I… Continue reading What the actual fuck

Look. I’ll be honest. This has been a shit storm of epic proportions. Today has kind of sucked. The pain came and went. The overall pulsing in my jaw was a constant reminder of tomorrow can’t come soon enough.  I’m dreading it.  Why?  Anyone who has gone through surgery knows how anxiety takes you over… Continue reading Dreading tomorrow, but hopeful

Today was actually a good day.  Aside from the insane amount of pain I feel all the time, I managed to put in a full day at work at the same time getting this jaw thing figured out.  I met with a new OMFS today, since the other OMFS is “too busy” to return my… Continue reading Relief in Sight

Since Mayo’s findings, I returned to CO last night. 14 hours of butt-numbing joy.  Went to the dentist today, here is the issue: You can clearly see the metal artifact that was left in my jaw by the best periodontist in the world.  I would like to take a brief moment in thanking you for… Continue reading Short update

I’m finding it really hard to start this post. From my last post, I returned to Mayo. What has been a nightmare since the implants were placed. I’ve been called crazy. Doctors that literally look at me with blank stares. Being told that I’m making this up by my family, and also being labeled as… Continue reading Vindication

All kidding aside. Mayo. Probably the most respected, if not, top healthcare organization on the planet. When the wife and I left in a scramble to get me to Minnesota, I frantically clicked the “Request an Appointment” button in my Mayo app. The pain in my face was mounting, returning. As I sat at my… Continue reading Hold the Mayo, Give Me Ham on Five

 2021 was supposed to be something new.  Nope.  Just more of the same.  From my last post, things still are up in the air.  Still going septic.  Still needing vancomycin/rocephin to stop my face from literally crawling away. As expected, the infectious disease Dr that was following me in the hospital (same idiot from 2018),… Continue reading Escape

Just like it says ill. I cannot describe how bad this really is. My face feels like it’s just on fire. The pain has been absolutely unreal.  Going through morphine. It’s immobilizing to say the least.  It’s probably the worst pain I’ve had to date. There is something in my cheeks.  Recurring complaint.  Nothing new there.  As I got… Continue reading Ill Communication

As much as I wish I was sitting In some bedroom somewhere with a typewriter and some batshit crazy lady wanting me to write a story, that would be a Stephen King thing.  Things have escalated again. For the worst of course. My birthday was yesterday. Misery would be the appropriate title to use here. … Continue reading Misery