Escape

 2021 was supposed to be something new.  Nope.  Just more of the same.  From my last post, things still are up in the air.  Still going septic.  Still needing vancomycin/rocephin to stop my face from literally crawling away.

As expected, the infectious disease Dr that was following me in the hospital (same idiot from 2018), of course, didn’t want to continue anything.  I am truly at a loss as to why, when there are physical sores and shit in my mouth, that they don’t want to help.  When you give me the right antibiotics, the pain starts to go away.  Why would any good doctor hear that and just do the complete polar opposite? 

It must be something to do with Colorado I swear.  So with that, I’ve escaped from CO, back to MN.  A medical asylum so to speak.  Right before I left, I got 1 more hit of rocephin and vancomyin @ Swedish.  The next day, I started dipping into the clindamycin stash I had.  And what makes this awesome, is its actually starting to help.  I don’t know if it was the blast of IV I got, but, the clindamycin has been keeping me out of the ER at this time.  The pain, inflammation, swelling, and sores that I have been feeling over the past year have actually started to retreat, get smaller.  The bloody / brownish shit still continues to come out of my head.  It feels like its coming from around my left eye / nose region.  My left cheek constantly hurts where the salivary duct is.  So perhaps that might be a clue as to where to look.

In the mad dash of getting the fuck out of Colorado, I only had 1 dose of SCIg left.  Today is my infusion day, and I don’t have any SCIg.  Since its the turn of the year, its the usual hoops if insurance approvals for the year, and paying the ungodly $3,100 for the first month of doses.  Never a dull moment.  They will be shipping my drugs tomorrow, but we have to boomerang them here to MN.  Hopefully Friday I can get my infusion in, and get a much needed pickup.  Feeling on empty from this past week.

This week has been tough.  I will be honest.  There are other escapes that needed to be made, however, I’ve had to move on from something I’ve had my whole life.  I’ve closed that chapter.  Sucks it happened, but it did.  In a way, I’m glad it did, because I don’t have to worry about that anymore.  I’m going to just be vague about it and leave it at that.  Not like it really matters that much anymore.

Getting to my uncles has been much needed calm, quiet, and relaxation.  0 stress with anything.  This is allowing me to achieve what I came here in the first place for.  Help.  To get to the bottom of why the fuck this shit is in my face and its not leaving.

During last week I was able to schedule an appointment with an infectious disease group here in MN not knowing what was going to happen with Mayo.  As I left CO, I submitted the appointment request to Mayo hoping it would just be a simple thing of that I’m an established patient, and they will just make room for me.  With the help of my immunologist, he sent out 2 referrals.  1 to Mayo, 1 to the other group.  

Tomorrow I see the first infectious disease group for a consult on what to do here.  I am hopeful that they listen, and consider the factual data here.  For once, I am done playing doctor.  I am done endlessly researching medical papers on what this could / could not be.  I am just done with the pain.  The constant ER visits, the literal pus that keeps coming out of my face needs to stop.  I want my life back.  What I’ve been doing up until this point is just survive.  Do whatever it takes to get to tomorrow.  If I gotta take this medication to perk me up and get me through the day?  Fine.  Whatever it takes.  

But with this visit to MN / Mayo, I want to end the underlying infection thats clearly made a home in my face.  I am hopeful that the Dr’s here in MN will treat me as a patient, instead of some crazy person.  I can assure you these physical things cannot be made up.  The labs, the cultures, the surgeries.  Sorry those are facts.  They happened, they are real.  Fuck anyone who wants to contradict the facts otherwise.  I seriously am done, and no longer have the patience for anyone who doesn’t validate that as real.

As this world has been falling into fast decay of disinformation, lies, misdirection, whatever label you want to put on it, people need to seriously stop and wake up.  There is much going on around us that is going to start tearing down the fabric of civilization if this constant chaos is allowed to continue.  I think people in general are done with it and just want to live their lives without being stuck in perpetual chaos.

Hopefully soon things will get better, for me, and everyone else.