This morning was rough. Not gonna lie. I woke up at 6:15am, instantly gagging and getting a ton of crud out from my face. I spent a solid 20 minutes of trying to pull it together. The usual garbage came out. No real change there. The pressure I’m feeling between my ears, behind my eyes,… Continue reading The Sinus Infection from Hell
Category: CVID
Anxiety For Tomorrow
Tomorrow I see Hepworth’s NP. This hasn’t gotten better. Between whatever is going on in my Sphenoid, the HSV-1 outbreak across my face, the cysts that continue to get bigger in front of my left ear and run across my jawline, and down my neck. Every morning I wake up, I blow out blood, on… Continue reading Anxiety For Tomorrow
Worst Outbreak of My Life
It started last week. Subtle, but something was starting. Something I haven’t experienced in a very long time. An old friend was slowly returning. When I was a teenager, I used to get cold sores constantly. Back then though, they didn’t have the antivirals we have today. Whether being on my inside of my lip,… Continue reading Worst Outbreak of My Life
Whirlwind of Doctors Once Again
Ok. Now I have more time to write. Starting about 3 weeks ago, the proverbial shit hit the fan again with my health. My mouth. For fucks sake. It won’t end. Near the end of May, my mouth was just hurting. The swallowing issues returned. The burning mouth. Everything is coming back again. Since I… Continue reading Whirlwind of Doctors Once Again
A long overdue blog post
I’m really sorry that I haven’t had more time to do this lately, as things seem to be spinning back out of control again. I’m back out on short term disability again… Things have gotten worse with my face and my neck. For starters, I’ve lost 2 more teeth. The upper tooth (#15) was removed… Continue reading A long overdue blog post
Ongoing Problems
With Fred out, the majority of the pain and discomfort and overall shittiness I was feeling is gone for the most part. Prior to the surgery, I have been complaining to my ENT about swallowing issues and swelling in the left portion of my face/jaw/neck. This has been a recurring problem that just won’t go… Continue reading Ongoing Problems
IVIg infusion #4 & Frustration
Woke up really early this morning for some odd reason. Unfortunately, I met my wife in the bathroom and she said “I’m running a fever.” I somewhat panicked. “I won’t be able to stay here then” I said to her. So I am crashing at my alternative life partners place until my wife can get… Continue reading IVIg infusion #4 & Frustration
Quality of Life
Exhaustion. Sleeplessness. Wiped out. Recovery from the tumor removal has really gotten hard. Pain still comes and goes, always at the worst times. I hate to say it, but I really wish that I had more time to recover from the surgery. I only had 2 real weeks of recovery. I feel extremely rushed to… Continue reading Quality of Life
Recovering isn’t easy by any measure
Recovering from the surgery has not been easy. Even though the surgery was 4/20 (almost 4 weeks), its definitely taken its toll on me along with my energy, positivity, and just overall outlook. Lately I’ve been feeling pretty disappointed. I was hoping to get some sort of postitive traction with my overall health, however, it… Continue reading Recovering isn’t easy by any measure
ENT follow up #2
Ugh. I don’t even know how to describe how utterly terrible my week has been. Probably the worst week I’ve experienced in a long time. For the past week, week & a half I have been experiencing sharp stabbing pains where Fred called home. It literally feels like someone is stabbing me repeatedly with… Continue reading ENT follow up #2