Not a fun blog post, or update today. Got my updated estimate for the implants to be surgically installed after the raging infection happened stemming from really bad root canals done in the past. I decided to do single implants for each tooth I am missing for several reasons. The main reason being that it… Continue reading Teeth update
Category: CVID
Nutrition and CVID
Over the course of the past 3 years, my dietary choices have become polar opposites. Previously, I will admit, I didn’t care. I honestly didn’t give a shit what went in my body and how much. Anything and everything. The perception being food is food. WRONG After moving to Denver in 2016, that changed for… Continue reading Nutrition and CVID
3rd Day After the Facepocolypse
WHAMMY Day 3. Wow. My last Dilaudid was at 5am today (I still have 5 left), and that stuff was really hiding the real pain. I’ve transitioned back to my Vicodin, however, it does absolutely nothing. The shit part of this deal is my need for continued pain management. Opiates suck. I cannot wait for… Continue reading 3rd Day After the Facepocolypse
Mentally Preparing Myself for the Future
Today has been a day of reflection, anxiety, nervousness, but optimism. I haven’t felt optimistic in a long time. I have always been a positive soul. Trying to do whats best, and helping out anyway that I can. The toxicity of the past 2 years has left marks, however, a grim reminder of how bad… Continue reading Mentally Preparing Myself for the Future
Sinus Surgery Date Confirmed | Fred’s Eviction Notice Served
Hey everyone, I received word this afternoon that the tumor in my head must come out immediately, and that my immune system therapy (might/might not) happen tomorrow, however, I have made the decision to move ahead regardless of getting the IVIg or not. Below is the CT scan of starting at the upper portion of… Continue reading Sinus Surgery Date Confirmed | Fred’s Eviction Notice Served
Awaken
This song sums up the literal war I have been fighting for the past 2 years to survive through several rounds of sepsis, hospitalizations, crippling pain, and pushing hard for the answers I needed. I’ve come to realize that it’s now become my time to Awaken and push hard to the finish. Funny, comes from… Continue reading Awaken
What doesn’t kill you, only makes you stronger
The infinite wisdom that my mom used to tell me growing up on a daily basis is starting to punch me in the face every day, and starting to bring light of my ongoing health problems. My mom had a quip for anything and everything. The one that that was very common was “What doesn’t… Continue reading What doesn’t kill you, only makes you stronger
IVIg Infusion #1
Well, I guess the snowstorm we got didn’t slow down my first IVIg infusion. Woke up this morning at @ 6:45am just stressed out. I called into the infusion center at 7am, and the answering service said normal start time, I was relieved. We got to the infusion center around 8:15am. I was met by… Continue reading IVIg Infusion #1
Fever, Pain, and Fatigue OH MY!!!!
My three most favorite non-favorite friends have been basically hanging out for a year now. Feels like I’m 80. What can I say, I am just wiped out all the time. I sleep, but feels like I got like an hour. I’m just exhausted. My body has put up with this for way too long,… Continue reading Fever, Pain, and Fatigue OH MY!!!!
Educating myself and others about immunity
Today is education day. I’ve started to delve deeply into IVIg and it’s uses with respect to the immune system. In previous posts, there is absolutely a clear indication of a TNFRSF13B mutation within my mother’s side of the family. It affected my sister in the form of GBS. My mom’s brother, Crohns. Again, my… Continue reading Educating myself and others about immunity