Category: CVID

Sinus Surgery Date Confirmed | Fred’s Eviction Notice Served

Hey everyone, I received word this afternoon that the tumor in my head must come out immediately, and that my immune system therapy (might/might not) happen tomorrow, however, I have made the decision to move ahead regardless of getting the IVIg or not.  Below is the CT scan of starting at the upper portion of… Continue reading Sinus Surgery Date Confirmed | Fred’s Eviction Notice Served

Awaken

This song sums up the literal war I have been fighting for the past 2 years to survive through several rounds of sepsis, hospitalizations, crippling pain, and pushing hard for the answers I needed. I’ve come to realize that it’s now become my time to Awaken and push hard to the finish.  Funny, comes from… Continue reading Awaken

What doesn’t kill you, only makes you stronger

The infinite wisdom that my mom used to tell me growing up on a daily basis is starting to punch me in the face every day, and starting to bring light of my ongoing health problems.  My mom had a quip for anything and everything. The one that that was very common was “What doesn’t… Continue reading What doesn’t kill you, only makes you stronger

Educating myself and others about immunity

Today is education day.  I’ve started to delve deeply into IVIg and it’s uses with respect to the immune system.  In previous posts, there is absolutely a clear indication of a TNFRSF13B mutation within my mother’s side of the family.  It affected my sister in the form of GBS.  My mom’s brother, Crohns.  Again, my… Continue reading Educating myself and others about immunity

Finding commonality within a sibling rivalry

Growing up with a sibling comes with the typical bickering that you would expect siblings to have.  Fighting over stupid things, arguing, just being siblings.  Over the years my relationship with my sister has evolved dramatically.  My sister is an amazing woman, and strong.  Does she have her faults?  Yes.  As do I.  Nobody is… Continue reading Finding commonality within a sibling rivalry

Coming to terms with Common Variable Immunodeficiency Disorder (CVID) and fighting for treatment

Coming to terms with having an immunodeficiency has been both a burden and a blessing, and a marathon all wrapped into one.  I’ll be quite honest, my life has not been easy to say the least.  From a medical standpoint, it has been a train wreck.  Like in my earlier posts, you can easily see… Continue reading Coming to terms with Common Variable Immunodeficiency Disorder (CVID) and fighting for treatment