Category: Uncategorized

Today was a really bad day. I’ll forgo the usual crap I talk about and just talk about what felt like a out of body experience today.  As the afternoon rolled in, so did a storm. Holy fuck I was crippled. I am really not sure how to describe what I felt but there was… Continue reading Diagnostic

I don’t know what’s going on anymore. The toxicity of the metal in my mouth has taken its toll. I am not certain, but it seems like more damage was done. The human immune system is fascinating with the fact that it will defend itself like nothing else. From my previous post, the kidney stones… Continue reading Shutdown

It’s been a tough beginning of the year. Things just not feeling right. Since Mayo, my face was “ok” but Jesus did it burn. Sting. And just throbbed.  It was inexcapable. After the drill bit  was removed things got worse. The sense of smell or taste. Often times it would evolve into a rotten smell. It would… Continue reading Kidneyyyyyyyyys

So. My discharge from the hospital caused more questions than answers. Yes. 3 weeks ago once again I passed yet another massive kidney stone.  It was no joke. It took about 2 1/2 weeks to pass it once I felt it start. If you’ve had one, you know exactly what it starts out as.  For… Continue reading Troubleshooting

Well.  One could say that the past 3 weeks have been absolute hell. Passing that stone was … painful. The amount of relief that came after was immense. However, the nausea never went away.  The week following the stone, my face just started to hurt. Pus started to come out of my ear lobes and… Continue reading Familiar Place

No not the neat movie with a flying dragon and a stupid horse. It doesn’t pale in comparison to the past 3 days. So. For starters I went back to the oral surgeon last Monday who pulled the drill bit out of my jaw. From what he says things “look” ok, however he immediately went… Continue reading Neverending Story

Identifying your faults it’s probably the first step to improvement. As much as I’ve talked about the past 3 years, it’s done some damage. Prior to my downward spiral from what I remember, I was laid back. Only cared about the now. Was simply enthusiastic, and energetic.  When the wife and I moved to Colorado,… Continue reading Reconfiguration

I guess it’s time to talk about something new for a change. The past 2 years has been literal fucking hell. I would have never imagined that this is what was to be.  I had a bad day at work today. Just out of the blue. Things felt ok when I woke up, but a… Continue reading Something new

Growing up as a kid sucked. I won’t go into all the detail of it, but the only real family member who actually loved me for who I was, well was my mother. After mom died in 2012, I thought to myself that “this is it” for the family. Wasn’t wrong As this illness has… Continue reading The Downward Spiral

I don’t know how else to title this one, so I’ll just put up what it is. Around 2pm my phone went off thinking it was just an notification from some annoying app on my phone. As I turned my phone over, lab results from Mayo. Last month based on the recommendation from the immunologist… Continue reading Ataxia Telangiectasia