This morning I woke up. With a little less pain, a little less swelling. In the past 5 days, I blew my backup stash of Famicilovir. The dermo did prescribe it, but not the right dosing schedule. When I did the initial 1500mg dose, the next day, I felt different. The electrical feels that have… Continue reading Still in Shock
ENT Taking Over
Since my last post, this sinus infection has taken on a whole new level. Between my labs looking like absolute dogshit, and what he visualized yesterday, made me see Hepworth finally come out of his shell. I got called yesterday from Kristen, Hepworth’s practice manager. She told me things are being put into motion. Apologized… Continue reading ENT Taking Over
Yesterday I Felt Like I Was on Fire
On Friday morning, when I woke up. I was met by the usual Charlie Horses in my calves and feet. I waited in bed for about 10 minutes for the spasms to let go so I could get out of bed. The night before was abysmal. Maybe slept for 24 hours total. Kept waking up… Continue reading Yesterday I Felt Like I Was on Fire
Still Nothing but Feeling Smarter
As expected. No callback from Hepworth’s office. Got called Wednesday that Anthem wanted a peer review of my imaging. MORE. FUCKING DELAYS. I didn’t move my appointment yet. Last night I had a very important maintenance that needed to get done. It’s a ticket I was assigned back in 2022. Moving local channels for the… Continue reading Still Nothing but Feeling Smarter
The Sinus Infection from Hell
This morning was rough. Not gonna lie. I woke up at 6:15am, instantly gagging and getting a ton of crud out from my face. I spent a solid 20 minutes of trying to pull it together. The usual garbage came out. No real change there. The pressure I’m feeling between my ears, behind my eyes,… Continue reading The Sinus Infection from Hell
Anxiety For Tomorrow
Tomorrow I see Hepworth’s NP. This hasn’t gotten better. Between whatever is going on in my Sphenoid, the HSV-1 outbreak across my face, the cysts that continue to get bigger in front of my left ear and run across my jawline, and down my neck. Every morning I wake up, I blow out blood, on… Continue reading Anxiety For Tomorrow
Worst Outbreak of My Life
It started last week. Subtle, but something was starting. Something I haven’t experienced in a very long time. An old friend was slowly returning. When I was a teenager, I used to get cold sores constantly. Back then though, they didn’t have the antivirals we have today. Whether being on my inside of my lip,… Continue reading Worst Outbreak of My Life
Quick Update on Where We are at Dr-Wise
The sphenoid infection is getting worse. Last WBC was 17. Today I met with my immunologist and spoke to him about 4 topics: As we talked, he just listens. Provides active feedback. My IVIg dose is increasing to 55g. Staying on Xolair. Brought up the fact Dr. Kaufman has been trying to actively contact Dr… Continue reading Quick Update on Where We are at Dr-Wise
The Weirdest Dr. Visit I’ve Had to Date
2 weeks ago, my WBC was trending downward. When I met with Kaufman, I made it clear to her that the antibiotics do not seem to be helping me. Normally with IV medications, roughly by the 2nd day, you start to feel some level of relief. That wasn’t the case. Between the tough IV Meropenem… Continue reading The Weirdest Dr. Visit I’ve Had to Date
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Describe the most ambitious DIY project you’ve ever taken on. My college final. At the beginning of our final semester, teacher assigned finals to each student. You could select any project you wanted. Most students were doing pre-built electronics kits from Radio Shack (yes you know how old I am now). AM/FM radio’s were really… Continue reading Untitled