Just a quick update. The MRI didn’t show anything of interest, however, the CT showed that my parotid gland is still enlarged and the lymph nodes are also still enlarged. I see a new ENT next week to hopefully address that. Me
Update on issues
Hey everyone, The past few weeks have been really busy with appointments. First off my infusion last Friday went without issue, my IgG has risen to 855, so the IVIg is doing its thing. My immunologist did increase my IVIg dosage to 50g, so hopefully that will help some. I saw my ENT 2 weeks… Continue reading Update on issues
Whirlwind of Doctors Once Again
Ok. Now I have more time to write. Starting about 3 weeks ago, the proverbial shit hit the fan again with my health. My mouth. For fucks sake. It won’t end. Near the end of May, my mouth was just hurting. The swallowing issues returned. The burning mouth. Everything is coming back again. Since I… Continue reading Whirlwind of Doctors Once Again
A long overdue blog post
I’m really sorry that I haven’t had more time to do this lately, as things seem to be spinning back out of control again. I’m back out on short term disability again… Things have gotten worse with my face and my neck. For starters, I’ve lost 2 more teeth. The upper tooth (#15) was removed… Continue reading A long overdue blog post
Ongoing Problems
With Fred out, the majority of the pain and discomfort and overall shittiness I was feeling is gone for the most part. Prior to the surgery, I have been complaining to my ENT about swallowing issues and swelling in the left portion of my face/jaw/neck. This has been a recurring problem that just won’t go… Continue reading Ongoing Problems
IVIg infusion #4 & Frustration
Woke up really early this morning for some odd reason. Unfortunately, I met my wife in the bathroom and she said “I’m running a fever.” I somewhat panicked. “I won’t be able to stay here then” I said to her. So I am crashing at my alternative life partners place until my wife can get… Continue reading IVIg infusion #4 & Frustration
Quality of Life
Exhaustion. Sleeplessness. Wiped out. Recovery from the tumor removal has really gotten hard. Pain still comes and goes, always at the worst times. I hate to say it, but I really wish that I had more time to recover from the surgery. I only had 2 real weeks of recovery. I feel extremely rushed to… Continue reading Quality of Life
Recovering isn’t easy by any measure
Recovering from the surgery has not been easy. Even though the surgery was 4/20 (almost 4 weeks), its definitely taken its toll on me along with my energy, positivity, and just overall outlook. Lately I’ve been feeling pretty disappointed. I was hoping to get some sort of postitive traction with my overall health, however, it… Continue reading Recovering isn’t easy by any measure
ENT follow up #2
Ugh. I don’t even know how to describe how utterly terrible my week has been. Probably the worst week I’ve experienced in a long time. For the past week, week & a half I have been experiencing sharp stabbing pains where Fred called home. It literally feels like someone is stabbing me repeatedly with… Continue reading ENT follow up #2
Hindsight is always 20/20 & The Social Awkwardness of CVID
Growing up with a hidden disorder wasn’t easy. As I’ve said in previous blog posts, my life has been a rollercoaster. Being sick all my life has taught me to roll with the punches, and accept the fact that I just get sick a lot. Again, in my youth, it showed itself as recurring strep… Continue reading Hindsight is always 20/20 & The Social Awkwardness of CVID