Author: john

Don’t even know how to describe what its like to have a kidney stone, but also I have no idea how to explain the pain that comes after surgery.  Having a laser and camera jammed up your peehole is not a pleasant experience to say the least. I got to the urology center here in… Continue reading Recovering from a Kidney Stone and Immunotherapy Changes

It’s 3am. I haven’t been sleeping well the past few months. I wake up to a dull pain in my lower back, and I thought to myself “that doesn’t feel right”. I sat up and was instantly met with the most painful thing I’ve ever felt. I immediately rolled out of bed and onto the… Continue reading 3am Wake Up Call

Since the surgery on 5/22, shit has just been upside down. For starters I’m in a severely shitty mood to start. It’s just the culmination of frustration with “the system”. It’s truly tiring to deal with our medical system. I feel like I am a product of its failure or success depending on which angle… Continue reading More “fun” facts

DIAGNOSIS:  Chronic maxillary sinusitis based pain PROCEDURES PERFORMED: 1.   Right endoscopic maxillary antrostomy 2.   Right endoscopic partial ethmoidectomy ANESTHESIA:  General endotracheal FLUIDS:  1000mL crystalloid ESTIMATED BLOOD LOSS:  5mL COMPLICATIONS:  None DRAINS:  None PACKING:  None INDICATIONS FOR PROCEDURE:    John is 40 and has been struggling with atypical infectious problems in his face and neck.  This… Continue reading Post Operative Report – 5/22/2020

I honestly can say that in the 3 years of my ongoing chronic illness, what was the clusterfuck of last Friday, that for once, I think I am finally getting relief. Friday started out in a blur as usual…  Woke up in a lot of pain, my vision was starting to get blurry again.  I… Continue reading Surgery Complete

So since my last post, I had a followup appointment with my ENT, and wow, finally convinced him there is still a lingering issue in my sinuses.  From my previous post, I had mentioned that I had a PET scan done.  From the results of the PET scan, the infection that was seen on the… Continue reading Another surgery

Wow… time flies.  My last post was this past summer, and much has happened.  From the summer I continually dealt with an unknown infection in my face.  In & out of ER’s again.  Scans.  Doctors that don’t listen. In September I chose to knock out the remaining teeth in my jaw, and get implants.  The… Continue reading A much needed update

Just a quick update.  The MRI didn’t show anything of interest, however, the CT showed that my parotid gland is still enlarged and the lymph nodes are also still enlarged.  I see a new ENT next week to hopefully address that.  Me

Hey everyone, The past few weeks have been really busy with appointments. First off my infusion last Friday went without issue, my IgG has risen to 855, so the IVIg is doing its thing.  My immunologist did increase my IVIg dosage to 50g, so hopefully that will help some.  I saw my ENT 2 weeks… Continue reading Update on issues