Being Chronically Ill

I am fairly certain that most of my issues now, are related to the implants. I’ve slowly started to notice that the implants in the front are starting to get exposed. That’s not normal. 

I contacted the place that did my implants again this week. As the phone rang and rang, I had a feeling that they were going to jump me through a multitude of hoops to get back on the schedule, however, they just want to make sure that my INR isn’t high so that I can get these pulled out without bleeding out. 

The rashes continue to get worse. Like. It’s the same as they were before. What the actual fuck is this?  At this point, I would give anything to just fucking know what all this is. Maybe this is my body reacting to the metal in my mouth?  At this point, your guess is as good as mine. It just feels like my skin has just been crawling. The red spots and bumps are in the same places, thighs, stomach, hips, back, neck, and chest. As each day passes, it’s getting worse. 

Even the sores in my mouth are getting worse. The small lumps that I have been feeling in my lip and chin area seem like they have been getting bigger. The burning sensation is unreal. It comes and goes, but Jesus Christ does it hurt. I can also feel them in my lower cheeks too. Small lumps that I can physically push around with my tongue. 

I really wish that I could find a doctor that could help me with this shit. I mean my immunologist is great, but he can only do so much. I am pretty much sold on the fact that these fucking implants have got to be contributing some sort of systemic reaction from my body. I have been doing a lot of reading and research in regards to implant rejection symptoms. Most of the stuff I am finding is extremely vague. Lots of stuff with knee/hip/shoulder implants, but really nothing on dental.  It seems like the only logical explanation at this point. Taking a step back and looking at everything, ever since these implants were placed, I’ve had had nothing but nonstop problems. Just like when the first implant failed, it’s hard to describe what it felt like, but my head was just numb. Going septic right after that was scary. Having doctors not listen to me as per usual. Giving me short sips of vancomycin. Every time I am given it, I start to feel better. I swear. 

I just wish that we could be at the end of all this shit. It’s been physically, mentally, and financially draining. It’s been challenging standing up for myself when it comes to doctors who seem to think they were gods gift to the medical field. Thankfully I’ve come across a few that actually took the time to listen, and actually do something. But they are really far and few between. Sitting in the office  @ UC Health where the ID Dr just leaned forward with all the false confidence in the world clearly stating that I was making all this up. It’s not surprising, really. I had false hopes thinking that UC Health was actually going to help, but man was I wrong. 

My new GP seems that he has some energy in him. Hasn’t been beaten down yet by a bloated and overloaded medical system. It’s only a matter of time. I feel bad for those people such as myself basically trapped in the middle with nowhere to go. 

Yesterday I was called by my home nurse for Immunoe. Just a strange conversation. She seemed angry and frustrated. I told her that I would be transitioning my SCIg to Soleo, and the conversation just got awkward. I explained to her that the whole reason I went on SCIg was so that I could just infuse myself at home. I see absolutely no value in going to the infusion center weekly. It’s only increasing my risk of getting sick. So their decision to make all these changes during a pandemic has me really thinking if they are just out to make money at this point. So my nurse told me they would ship me another dose until I was transitioned. 

I just have a bad feeling about all this. Call it experience.