When Does This All End?

Since 2015, things have just slowly deteriorated to the point of where I am at today. Last year after getting COVID, really put the pressure on. As I sat at PSL, I pled again to infectious disease to only be treated as a crazy lunatic. It’s quite sad how the American medical system treats patients… Continue reading When Does This All End?

Disability

Sorry for being off air for so long. A whirlwind of shit has come my way since the last post. I’ll post a very long and meaningful update when I have time to. I’m still here.

Mastoidectomy #2

               SWEDISH MEDICAL CENTER                             501 EAST HAMPDEN AVENUE                             ENGLEWOOD CO  80113 PATIENT NAME:    ZOUBEK,JOHN ROBERT   REPORT#:0601-0177REPORT STATUS: Signed ATTENDING PHY:  Pazurek,Anna Maria  MD                                    OPERATIVE REPORT CC:   ROCKY MOUNTAIN EAR CENTER    Christopher M Courtney, MD    Edward J Hepworth, MD Patient Name:  ZOUBEK, JOHN ROBERT Date of Surgery:  06/01/2023 SURGEON:  James Eric Lupo, MD… Continue reading Mastoidectomy #2

Round 2

Today is worse than yesterday. It’s literally 10 minutes after antibiotics and I’m just trashed. Everything hurts. Just feels like I’ve been ignored for way too long. Nobody listened. They would rather mark me off as being crazy rather than help. Or at least try to get me in the direction I need to go.… Continue reading Round 2

Fight Mode

Well. A year later, I’m still here, and so is the infection. I feel like I’m doing the right things, saying the right things, but everything falls on deaf ears and blind eyes. Since getting the 2 cysts removed by schleve 3 weeks ago, everything has gotten worse. Where he took them out, I can… Continue reading Fight Mode

Miserable

I don’t know what’s going on but things have shifted to what the fucksville again. I woke up this morning just feeling weird. Like. Really weird. I wasn’t in pain. Which was odd. I typically wake up with it. So I want used to it being gone. As the day went by, my face and… Continue reading Miserable

Struggling

The last few days have been really shitty. My neck and cheeks just burn. I know it’s progress. I hurt less. I’m starting to get some energy back. It’s been a long time coming. I spent last weekend reflecting on the past and how I got to where I am today. As I flipped forward… Continue reading Struggling

Awhile

It’s been awhile since I’ve put any thoughts down. Talk about a rollercoaster. Since I was diagnosed with Lyme, it’s been an uphill battle. Daily. Shit. Sometimes hourly. Since last I wrote, I went off invanz, and went back to ceftriaxone. I was elated. that maybe, just maybe I’m gonna pull out of this hell… Continue reading Awhile

Too Long

I have to start this off with saying that it has absolutely taken way too long to get help. To be honest 2018 was when this started to take from me. Slowly every day I felt this dark grip slowly dragging me under. I shrugged it off as being overworked (which I was). UC Health… Continue reading Too Long