Author: john

For probably the last year, I have no idea what that means. Since the pain began to intensify, my sleep went to absolute shit. And yes. That’s WITH Ambien. Since the dalbavancin, I’ve been able to sleep the past 3 nights unbroken with 8+ hours of sleep. They say delirium starts when you don’t sleep.… Continue reading Sleep Is Key

I woke up this morning feeling much different. My fever last night hit 101.7. Everything hurt. It’s the familiar feeling of what antibiotics (the right ones) do. Typically within 5 seconds of waking up, the agonizing pain hits reminding me it’s still there. But what’s different about today, is it was less. Much less. Typically… Continue reading 24 Hours Later

Woke up at 3am this morning to the usual pus in my mouth and in my sinuses. I’m averaging 3-4 hours tops with sleep. That’s with Ambien too. I’m just a walking husk at this point. I got a pair of bone conduction headphones for when I can’t sleep and I watch TV. That way… Continue reading Dalbavancin

As much as I wanted to be getting better and recovering and returning to work, I don’t think that’s going to happen. I’m supposed to be back 8/31, but after this week, I don’t think that’s going to happen. First things first, port was successfully placed in my right shoulder on Monday. Procedure itself went… Continue reading Port Placed and Continued Misery

Tomorrow is the day. The day I’ve tried avoiding since 2020. If you haven’t been following closely, or if it’s been awhile I’ll catch you up. In 2020 my veins started calling it quits, and as we all know, COVID came. I switched to SCIG. What I thought would be better for me. Turns out… Continue reading Pre-Surgical Jitters

IMPRESSION: 1. A left wall up mastoidectomy has been performed. There is fluid and/or soft tissue thickening in the mastoid resection bed. This may be seen with chronic otitis media. This could be seen with a cholesteatoma. The bone over the tegmen mastoideum is thin and may be dehiscent. This is a new finding. 2.… Continue reading CT Results

Just got off of the intake call for ketamine and pending pain managements approval, I can start ASAP. Port will be placed on Monday, and IVIG starts Tuesday. Fucking finally making progress. I’ve felt stuck for the past 2 weeks but hopefully this gets the ball rolling for a healthier/better me.

As much as I wanted the mastoidectomy to solve everything, it hasn’t. Last weekend more pus has started to come out of the left ear and my face. It just burns. I wake up hourly now. I keep getting weird temperature spikes. The pus is the same consistency. Yellow, chalky consistency. Luckily Dr Lupo got… Continue reading Going Back The Other Way

The end of this week wasn’t ideally what I was thinking was going to happen with Hepworth. Got the call from his surgery scheduler… October 25th. Are you fucking serious almost came out of my mouth. She knew I was livid. She only made it worse by saying “Try to stay calm”. Listen. I’ve been… Continue reading Another Sleepless Night

Last Monday came. No calls from the ENT’s office. So Tuesday morning I called. About 2 hours later I get a call back. To my non-surprise, of course nothing has gotten anywhere. I began to tell her that if they cannot coordinate by the end of the week that the surgeries/procedures that Hepworth needs to… Continue reading Still Waiting