Anyone who has ever had a kidney stone knows how extremely painful it is. This will be stone #16 for me since 2019. I really don’t understand what kicked all of this off. I drink fluids. It’s not like I’m NOT drinking. I have a feeling it’s related to the infection in my face. Your… Continue reading Dreading Tomorrow

As things have been up and down all summer with what’s been going on with my health, over the weekend I got an email from the Urologist that I have an appointment on Monday. I guess when I switched phones the calendar event didn’t move over. Fine. Whatever. I guess I’ll go. As I was… Continue reading Unexpected Surprise

So first off, I completed the final sessions of ketamine this week. Unlike the other weeks, I did ketamine every other day starting on Monday. My final dose topped out at 150mg. I gotta say it has been tremendously helpful getting the pain under control. By the end, however, I could tell that the amount… Continue reading Marathon week

So. We went grocery shopping last week. I got all the ingredients for spaghetti and meatballs. But I was able to will up the strength to do it. I was going to try yesterday after ketamine, but quickly determined that the two shots I got weren’t gonna let me use my arms for the rest… Continue reading Major Milestone

So earlier this week I pulled the 5 alarm fire with my ENT who performed the Mastoidectomies the past 2 years. I had an appointment scheduled for late next week, but this couldn’t wait. Pus is still coming out of the incision area and from behind my ear. It stings, it really hurts, and it’s… Continue reading Follow-up with ENT / Ear Doctor & More

Just wanted to quickly share that I paid off a hospital bill with some of the proceeds from the GoFundMe. The rest will eliminate one of the credit cards I have been using to pay for medical expenses. Thank you to everyone who has helped me chase down this nightmare of medical bills.

Yesterday was Ketamine infusion #3. 120mg. I was sort of expecting to go through it and at the end have the #tooktoomuch reaction. I didn’t. It was perfect. I woke up this morning at 5am to absolutely no pain whatsoever. I often wonder how much longer I have to wait to get here, where I… Continue reading Serenity

This morning was pretty rough getting out of bed. 6am came quick. The sleeplessness has started to creep back. I woke up a few times. Yes. The pain is starting to come back. I can feel the swelling in my face near my jaw start to flare. At 3am, I got up to take my… Continue reading Rough Morning All Around & Reflection

A few people at work decided to put together a GoFundMe page to help lighten the burden of all the medical bills that are starting to pile up. I’m really grateful for everyone in my life. If you feel like helping donate, or just sharing to social media to get the word out I would… Continue reading GoFundMe

Not by any means my fault. We got to the infusion center 10 minutes before they opened. Once they opened the doors, it was a ghost town here. Literally 2 people plus hepworth. Nobody in infusion. We hung out till 8:15, then headed up to ENT. Around 8:30, we got called back. But sat forever… Continue reading Late Start