This morning I woke up. With a little less pain, a little less swelling. In the past 5 days, I blew my backup stash of Famicilovir. The dermo did prescribe it, but not the right dosing schedule. When I did the initial 1500mg dose, the next day, I felt different. The electrical feels that have… Continue reading Still in Shock
Category: CVID
ENT Taking Over
Since my last post, this sinus infection has taken on a whole new level. Between my labs looking like absolute dogshit, and what he visualized yesterday, made me see Hepworth finally come out of his shell. I got called yesterday from Kristen, Hepworth’s practice manager. She told me things are being put into motion. Apologized… Continue reading ENT Taking Over
Yesterday I Felt Like I Was on Fire
On Friday morning, when I woke up. I was met by the usual Charlie Horses in my calves and feet. I waited in bed for about 10 minutes for the spasms to let go so I could get out of bed. The night before was abysmal. Maybe slept for 24 hours total. Kept waking up… Continue reading Yesterday I Felt Like I Was on Fire
Still Nothing but Feeling Smarter
As expected. No callback from Hepworth’s office. Got called Wednesday that Anthem wanted a peer review of my imaging. MORE. FUCKING DELAYS. I didn’t move my appointment yet. Last night I had a very important maintenance that needed to get done. It’s a ticket I was assigned back in 2022. Moving local channels for the… Continue reading Still Nothing but Feeling Smarter
The Sinus Infection from Hell
This morning was rough. Not gonna lie. I woke up at 6:15am, instantly gagging and getting a ton of crud out from my face. I spent a solid 20 minutes of trying to pull it together. The usual garbage came out. No real change there. The pressure I’m feeling between my ears, behind my eyes,… Continue reading The Sinus Infection from Hell
Anxiety For Tomorrow
Tomorrow I see Hepworth’s NP. This hasn’t gotten better. Between whatever is going on in my Sphenoid, the HSV-1 outbreak across my face, the cysts that continue to get bigger in front of my left ear and run across my jawline, and down my neck. Every morning I wake up, I blow out blood, on… Continue reading Anxiety For Tomorrow
Worst Outbreak of My Life
It started last week. Subtle, but something was starting. Something I haven’t experienced in a very long time. An old friend was slowly returning. When I was a teenager, I used to get cold sores constantly. Back then though, they didn’t have the antivirals we have today. Whether being on my inside of my lip,… Continue reading Worst Outbreak of My Life
Whirlwind of Doctors Once Again
Ok. Now I have more time to write. Starting about 3 weeks ago, the proverbial shit hit the fan again with my health. My mouth. For fucks sake. It won’t end. Near the end of May, my mouth was just hurting. The swallowing issues returned. The burning mouth. Everything is coming back again. Since I… Continue reading Whirlwind of Doctors Once Again
A long overdue blog post
I’m really sorry that I haven’t had more time to do this lately, as things seem to be spinning back out of control again. I’m back out on short term disability again… Things have gotten worse with my face and my neck. For starters, I’ve lost 2 more teeth. The upper tooth (#15) was removed… Continue reading A long overdue blog post
Ongoing Problems
With Fred out, the majority of the pain and discomfort and overall shittiness I was feeling is gone for the most part. Prior to the surgery, I have been complaining to my ENT about swallowing issues and swelling in the left portion of my face/jaw/neck. This has been a recurring problem that just won’t go… Continue reading Ongoing Problems