Time flies when you’re not having fun. To piggyback off of my last post, my face continues to hurt, and my neck. Ever since my heart attack my back has not felt right. At all. Way at the bottom. It was always aching. Well this past month, things changed. Pain started to radiate towards my… Continue reading Lots of Updates
Author: john
A New Level of Pain
I haven’t written in awhile. I’m sorry. The past two months have been horrible. Absolutely horrible. Everyday I wake up with the hope that it’s going away. It’s not. The swelling continues to get worse along my jawline. The absolute fire of my entire face, left ear, mouth, and neck is excruciatingly painful. I literally… Continue reading A New Level of Pain
72 Hours of Hell
Friday was IVIg. New nurse too. Lisa I guess moved on. Soleo is now outsourcing nursing to Enliven (never heard of them before). Friday started out early for me. Getting a needle shoved into your chest by someone new is an anxiety-inducing thing I always go through. I tried to get as much work as… Continue reading 72 Hours of Hell
Controlling Inflammation
Yesterday was terrible. Between the pressure drops, and the overall inflammation in my face and mouth, I don’t know what’s worse. People often ask me “Hey what are you doing this weekend?” My atypical reply is “nothing”. The only thing I do on the weekends is try to sleep as much as possible. Rest. Chronic… Continue reading Controlling Inflammation
The Fire
Every morning it’s the same thing, I wake up to my mouth, throat, and sinuses on literal fire. It’s become a daily challenge to stay focused on the balance of keeping up with work and the constant reminder that this isn’t over. It’s been frustrating to say the least. I get ahead, to only be… Continue reading The Fire
Can’t sleep
The worst part about all of this pain I continue to endure, is my inability to sleep. Ambien helps, but lately it’s been taking anywhere from 1-3 hours to kick in, whereas before, it was within 30 minutes. The crazy rash that decided to show up on my chest and back almost looks like an… Continue reading Can’t sleep
Freedom From Pain
Yesterday was ketamine. I was looking forward to this appointment for many reasons. For starters, earlier in the week, I got an email from Klarisana that they now accept and bill insurance directly. This is a huge change from what it used to be. Before, you got a bills, and submitted it to insurance. The… Continue reading Freedom From Pain
Slow Progess
Well. Progress is progress. Moving in the right direction for once. The proverbial downward spiral of the last 5 years seems to have stopped. Over the weekend I had a near-anaphylactic reaction to Starbucks. Everything hurt. Burned. My tongue was black. Again. Which got me to think about what I’m doing wrong. It’s the amount… Continue reading Slow Progess
Labs :(
Been a long hectic week so apologies for no updates. I did get my labs back from my past IVIg therapy, and my WBC’s have shot from 9 back to 16.7. I’d really love to know what’s doing this. I really would. At this point I have no idea what’s doing it. I did see… Continue reading Labs 🙁
The Outbreak Continues
Well here I am. At 8:40pm. Reading up on shingles. Which antiviral to take, and when. I’ve been religiously taking 1500mg of famcilovir 3x a day (500mg each time) daily for 3 days. This afternoon, I started to get itchy. I mean burning itchy. That’s when I realized this is something else. After I came… Continue reading The Outbreak Continues