Author: john

Same Shit, Different Day

Starting off this morning, is the same shit I’ve come accustomed to experiencing. Waking up to my mouth, throat, and sinuses on fire. Took me a bit to get up, but I was able to get the Vancomycin started on time. I waited till 8:30am to call Envirospec. Left a message, and was called back… Continue reading Same Shit, Different Day

Continued Misery

I slept horribly last night. The skin crawling feeling is back. The respiratory issues are back. The feeling of being dropped down of a 3 story house is back. I’m exhausted. I didn’t do much of anything at all today. My mouth is killing me. And to top it all off, my ear is killing… Continue reading Continued Misery

Apartment Update

So I spent a pretty good amount of time between Thursday till this morning compiling a list of apartments that both Anies and I needed to go see today. We started out at 11am, going through the list of places. First place we went to needed an appointment, so we made it for 1:30pm. We… Continue reading Apartment Update

Untitled

What skills or lessons have you learned recently? Lesson-wise, don’t trust everything a doctor tells you. Challenge them. Make them justify their answer. Stop blindly accepting what they say is gospel. Remember, you’re the one with the illness, you know what normal is, don’t accept the new normal without advocating for yourself. Skills-wise, I’ve re-learned… Continue reading Untitled

Apartment Hunting

So this afternoon I started looking at different apartments. I think it’s the best case scenario of getting out of here, before things become much worse. I found 3 apartments that look like good possibilities, so hopefully we can look at them, make a decision. Then the hard part begins. Getting out of here will… Continue reading Apartment Hunting

Stop the Count

As I woke up this morning, the usual morning email came in from LabCorp for labs that were drawn yesterday at infectious disease. Unfortunately, my WBC has gone back up again. Two weeks prior, I was at 16.1, last week, 11.3, but as of yesterday, back up to 15.3. I feel like shit. I’ll be… Continue reading Stop the Count

Not Wasting Time Anymore

This morning was infectious disease. I talked about how it was so fucking hard to get on the antifungal posaconazole when I left the hospital. I got 4 days of it. It started to put the fire out in my mouth, face, neck, and ear. Even the top of my head felt better. When I… Continue reading Not Wasting Time Anymore

Eating Post Heart Attack

Since the heart attack, I’ve had to pull way back on everything. Including food. Not really by choice, my appetite has just been absolutely non-existant. Leading up to the heart attack, I wasn’t really eating much. Maybe once a day, just due to the sheer pain of when my salivary glands would turn on. The… Continue reading Eating Post Heart Attack