Same Shit, Different Day

Starting off this morning, is the same shit I’ve come accustomed to experiencing. Waking up to my mouth, throat, and sinuses on fire. Took me a bit to get up, but I was able to get the Vancomycin started on time.

I waited till 8:30am to call Envirospec. Left a message, and was called back pretty quickly. I explained the situation that we are dealing with, and requested 5 samples be taken. I sent over the post report to them from the other company just so they have a comparison. I went on to tell her how the cleanup was done. She couldn’t believe it either. She was surprised that they were not called back for the post testing. I need to return to our apartment briefly tomorrow to let them in and get the testing done at 2pm. Hopefully my ivig is done before then.

I got everything packed to head to my friends place for the rest of the week. Last night, I contacted my IVIg nurse giving her the different address, telling her about what’s going on, and how I cannot be exposed to this apartment any longer, and I don’t want her exposed either.

Since Saturday, when we signed the application for the new place, my anxiety has gone through the roof. Fear of the unknown. Having to coordinate a move that we shouldn’t have to be doing. Worrying about the future, and the legal nightmare ahead. I’m pretty sure we will be able to get out of the lease, but realistically, it’s the damage done and the continuing issues we have while staying here. I ended up calling a friend to just run everything down. Just wanting to make sure I’m not overreacting to the situation, I know I’m not, but it’s just good to get a 3rd person perspective on the situation. After we hung up, I did feel calmer. But the looming future of this nightmare still exists.

I’m really hoping that this just gets resolved, and we are able to walk away from all this in the end. It’s unfair to think that the property did what they did, and turned around to try and “settle”. I get it, but at the same time, it’s fucking infuriating. I would never do this to someone else. Ever.

Before I left for Infectious Disease, I took my Vancomycin with me. Since I’m gonna be doing a bunch of stuff, I can’t miss it. Right as my Vancomycin is due, is when I see Chauhan.

I got labs drawn at infectious disease, nothing really important. Got more Heparin lock syringes and a ton of aqua guards so I can shower and I got out of there pretty quick.

I got to Dr. Chauhan’s office about 15 minutes early. Filled out all the new patient paperwork, and was called back before I had it done. As I got in, they wanted an EKG right away, while the nurse was hooking me up, he was asking me a barrage of questions. Got the EKG done, and the barrage continued.

How am I feeling? Symptoms? Medications? The usual. 1pm came and I just got the Vancomycin out and started it in front of the nurse. He said that’s the first time a patient has ever done that. No shame to my game.

He took my BP, which was 122/80 (awesome), and the rest of my vitals, got up and said the Dr would be in soon. 20 minutes went by, and nothing. Soon after the nurse poked his head in and said that Dr. Chauhan had to run to the hospital for an emergency. I told the nurse I have a ton of patience, I’m ok with waiting.

Around 1:45p, Dr. Chauhan came through the door all apologetic. I shook his hand (I rarely touch people) and told him that he absolutely doesn’t need to apologize. We ran down how I was doing where I am at. Told him I need refills for everything. Then asked him when would be appropriate for me to go back to work. I told him my FMLA is good until 1/3/2024, but I was thinking about going back on the 27th.

No.

He said that I really need to take the time to rest. Again reminding me that this isn’t a race. Something that I need to constantly tell myself. I also mentioned the stuff about the mold. He agreed that the mold infection, was most likely what tipped the cow over. I told him of the research of mold causing clots, heart problems, and heart attacks. He said “You really do your homework don’t you?”. God this doctor is a fucking rockstar. He agreed saying that mycotoxins that mold produces can definitely cause what I had said.

Additionally, he wants me to start doing cardio rehab which will be done through Rose Medical. He wants to make sure I “cure” the minimal damage to my heart. They will call me when they are ready to start.

At the end of the appointment I told him of Sarid’s concern of clotting, and the IVIg. The potential for a possible clotting disorder. He simply said, you’re on Lovenox (injectable blood thinner) for the rest of your life. I was relieved.

He noticed my watch, and said he wanted one. I took it off and handed it to him and said “try it out”. He said “Really?!?” I didn’t care. This is the guy who saved my fucking life. I owe him a lot. Told him that he needs to buy one soon because apparently there is a patent infringement lawsuit. They are going to temporarily stop selling them. I told him if he wants one, after my appointment, to order one asap. I looked up availability and told him which stores had it for pickup tonight. Hey. This guy fucking helped me in ways nobody else would. Least I could do is help him with that.

Sarid ordered a ton of labs. I was hoping that tomorrow before ivig, we could just draw them before. Soleo called me this morning saying that they won’t be able to draw them. So I headed down to Immunoe, got labs drawn, and drove back to my appointment for Dr Courtney.

I got to my GP’s office early. I brought all the paperwork with to fill out since I just got the STD/FMLA packet. I was hoping that if I got in early, that he would see me sooner.

Not the case. I have an attorney call that needs to happen today. You’d think 45 minutes would be enough time to get this done. It’s 4:23 and he’s yet to walk in the room. He’s definitely running behind. So I’m gonna have to do both at the same time.

Which ended up being the case. I helped Dr. Courtney fill out the form up until the attorney called. I did a lot of the prework prior and had it on my phone, so I had the attorney in my ear, while he filled out everything while looking at my phone.

As for the Dr visit, paperwork is filled out, I just need to send it to Sedgwick. At the end I asked him for Valium. The anxiety I’m experiencing right now is through the roof, I need something to keep me calm for awhile.

As for the attorney, I will be hiring him. He knows exactly what needs to be done and how to do it. I’ll keep what was said private, but I will say this, things will get taken care of without a doubt. I’ll have a meeting next week with him to finalize everything and get things started.

Good luck to the property, they are going to need it.

On the new apartment front, we were approved. I moved up our move in date to 12/20. I guess Happy Birthday me? But all kidding aside. I got to my friends house late. But I managed to get the lease signed using my phone. Once Anies signs, Wednesday I need to bring a cashiers check for $1500 and it’s done.

Before I left, I waited for Anies to come home to talk about the lawyer, and my day. We also discussed the final move date so I can schedule movers. This will give us time to move most of the stuff ourselves so we don’t get shafted with a $3000 moving bill this time.

I can’t wait for all of us to be out of there. I am now a little optimistic that 2024 will be a better year for sure. I’ll have to put up a whiteboard that says “It’s been _____ days since John’s last ER visit”

Also. I applied for an ESA (Emotional Support Animal) for both Athena and Venus. Realistically that’s why I got them. I needed them. Athena and Venus our our two Savannah cats that I got last year. They have been so helpful in getting me through all this. Just recently, we adopted a 3rd, his name is Hades. He’s such a mommas boy tho. The ESA will allow us to not pay pet rent. Nor pay for a deposit since they will be medically necessary. I finished the application while driving between appointments, and they were approved. I’ll get the letter in 5 days 🙂

Tomorrow is going to be a busy day, I need to setup mail forwarding, move utilities, unfortunately add renters to the new place, but keep it on the old one… and find movers. On top of doing IVIg and doing the mold testing.

I will say this, today has wiped me out. I’m fucking exhausted. But it feels good I was able to get a lot done today. I’ll get more done tomorrow.