Well. It’s been a very long day. I got to Swedish right at 8:15am, got checked in. Got my arm band. Then headed up to nuclear medicine. Waiting room was just full. So I stood against the wall away from everyone. Shortly after I was called back. After a few verifications, I had my port… Continue reading The Scanning Round 1

Tomorrow is a big day. The 111-Indium Tagged WBC scan. Yes they are going to draw a lot of blood, as to how much? I have no idea. For the next 48 hours though, I won’t be able to use my steroid dental paste that I’ve been relying on to help with the mouth stuff… Continue reading Nervous About Tomorrow

As time has gone on since the sinus surgery of last year, I’ve learned so much in a short amount of time. In short, mycotoxins can fuck you up. Immunodeficiency? Amplified by 100. Genetic predisposition? Amplified by 100 again. The issues I’ve dealt with over the past 3-5 years can easily be summed up to… Continue reading Mycotoxins, CIRS and Anger

Dr. Divekar. The immunologist who originally diagnosed me with CVID after I was consistently ignored by UC Health. He was the one that finished what UC Health started. He was the one who wrote the need for IVIg letter. To only be ignored by UC Health, and told “I’m just dehydrated”. Finding Dr. Sarid was… Continue reading One of My Guardian Angels

Looks like labs came back preliminary. Still waiting for the rest of the results. But Good news is the vancomycin is out of my body. The bad? My WBC are extremely high. As well as ESR. CRP for some reason has come down with is good. Infectious Disease left me a VM this morning letting… Continue reading Early Lab Results

Had to get more labs drawn today. I woke up at 5:30am. But I slept like complete crap. So I started off the day just exhausted. Work had a few early morning issues that I jumped in and helped with until it was time to leave. I printed off the ATM genetic test results before… Continue reading More Labs and Borrowed Time

An unintended side effect of the heart attack is I’ve been losing weight without trying. At most I can can only consume about 1200 calories a day with the barrier of 1500mg of sodium per day. I’m still trying to figure out the nutritional aspect of this, I know it’s a work in progress. I… Continue reading Losing Weight, Broken Sleep, and Fevers

It’s been a rough week. On all fronts. I did return to work on Tuesday, which is something I’ve been looking towards. I have a hard time staying idle. Doing, well I guess “nothing”. When we moved I setup our new Quantum fiber setup. The new apartment has Cat5e in the walls, so I put… Continue reading Can’t Sleep AGAIN

Yesterday showed my Vancomycin trough level to be dangerously high. I was in the 50’s. So I held my vancomycin all day yesterday. Had labs again, and it’s dropped to 27. My visit this morning with infectious disease was just labs. Hopefully the vancomycin trough continues to drop. Because too much of it can cause… Continue reading Full Stop

After the fiasco this morning, our HR group did not waste any time. I had a message by noon that the issue was fixed, but still unknown when I’ll get paid. I logged into Sedgwick’s site, and without hesitation, they fixed all the dates, and automatically approved my paperwork. I feel like this entire day… Continue reading We Fixed the Glitch