I was somewhat dreading today. As I had an appointment with cardiology after they got weird after Klarisana sent the clear to have ketamine form to them. Mostly just confusion.
I was supposed to see Dr Chauhans assistant, but it was actually Dr Chauhan who walked through the door. I felt 100% better when I saw him. My BP was 120/70. Looked great. We got straight to business. The ketamine. He said there were no contraindications for ketamine use after 6 weeks from the procedure, and that’s exactly where I’m at. 6 weeks would’ve been this past Monday.
He had absolutely no problem signing the form and allowing me to resume treatment. The only thing he said, was if I have any issues, that I am to tell him immediately, which I absolutely will. He said everything looks good from a heart perspective, and that I’m looking much better than from when he saw me the 18th last month. Which is reassuring.
I’ll be starting cardiac rehab this month on the 18th, and I’ll be going 3x a week for 12 weeks. This will helpy heart heal from the minimal damage from the ESTEMI attack I had on Nov 27th.
As I walked out of that appointment, I got an email, from Charter. My ADA was approved which allows me to work from home 100% of the time from 1/16 until 1/31, such a relief. It will be a huge help with everything on the recovery end of things. super relieved that happened.
I texted Klarisana as I got in my car letting them know that I got clearance for ketamine and asked when their next appointment was. I was thinking maybe a week, nope, tomorrow 10:45am. I was surprised. So I started texting a few friends if they could take me, and one replied immediately saying they could take me. Fuck yeah. Finally a good day.
Afterwards it was onwards to LabCorp. Only problem is, the LabCorp was running 2 hours behind. So I had to skip the posaconazole serum level test, and get to my Infectious Disease appointment. I was 7 minutes late. I hate being late. For anything.
I was brought back and Dr Kaufman came in shortly after. My first concern was my bloodwork going back the other way. WBC back up to 14.5. CRP/ESR starting to trend upward at an uncomfortable rate. I should be getting better, not worse.
I told her of the night sweats, the fevers that come back around 6pm. The body aches. The non-stop coughing. The I feel like megashit.
With the MRI showing concerning items, I asked her to keep me on the vancomycin for another week, we can stop the Ceftriaxone. Don’t really think it’s providing any benefit. Vanco is the drug that has constantly shown consistent value in making me feel better. She decided it’s a good idea to continue. Since I’m seeing Hepworth on the 16th, it just made sense. I know this appointment with Hepworth I’ll be a little more aggressive than usual, since I still continue to get this shit out of my head constantly. I just want to get back to “normal”. Whatever that is. She was quite pleased I looked better. I feel better, minus the bullshit in my face, mouth and neck. Which I’m convinced it’s fungal leftovers. Only way to get rid of it, is surgical intervention. I can only hope that he can just get me into surgery in a “respectable” amount of time instead of like last time where I have to fucking wait 6 months for him to not do everything he was supposed to.
The only thing left to wait for is Sedgwick approving my STD extension from 1/3 return, to 1/16, which I don’t think there will be a problem there.
Yesterday I spent 2 hours at Dr. Courtney’s office filling out both the Sedgwick and Charter ADA paperwork. I used the previous paperwork for sedgewick, added on the toxic mold exposure elements, as well as the low IgG levels to sort of solidify why I need a bit more time to get back to “normal”. The ADA paperwork however was much harder to fill out. The questions are misleading, and difficult to read out. A few times Dr Courtney stopped in to see where I was at and helped with the input of what we should be saying, hen bounced out to help other patients. But by the end my hand hurt from all the writing, making sure I was saying the things that a Dr would say.
But it’s all true. The toxic mold exposure is 1000% to blame here for the past 5 years of kidney stones, clots, DVT’s, and ultimately, the ESTEMI heart attack. It’s so fucking hard to believe it, but mold will fuck you up in ways you cannot imagine. The mycotoxins that mold releases into your blood stream just cause a domino effect of issues. Kieth kidney stones, it exponentially increases the amount of oxalate in your bloodstream. This oxalate is filtered into your kidneys, well it’s only a matter of time when the mold starts fucking with your thyroid which is responsible for calcium regulation in your bloodstream. Too much calcium? Yup, you guessed it, it gets filtered by the kidneys, and then the calcium bonds with the oxalate and from there, it’s like mineral deposits. Once they are there, there’s no way to get rid of them naturally.
This explains the 17 kidney stones I’ve had since 2018. They are no joke. It’s the worst pain anyone could ever feel. Keep in mind, every kidney stone I’ve ever passed, has, well you guessed it, calcium oxalate.
Mycotoxins from a blood perspective increases the amount of Cytokines and how they bind with the receptors of your cells, which in turn tells them to clot. The mycotoxins also cause deregulation of your hypothalamus which just allows it to continue until, well, something serious happens. It directly causes your red blood cells, and platelets to malfunction and just do things they normally shouldn’t be doing. The IVIg treatments do increase clotting possibilities, so with that, and the mycotoxins, boom. That’s how I got here.
Who told me all this? Nobody. Nobody took the time to deep dive my problems. Get to the root of the issues. But again, that’s the healthcare we have in America. Focus on the effect, take this pill, and go away. I hope you feel better. The roach I started to take was to find the root cause of what’s doing this. Again, the piece I’ve been missing the entire time was the Alternaria mold that found a home in my left frontal sinus. Had we not done that surgery, or did the gram stain, I’d still be struggling, and probably still living at that biohazard that would’ve probably killed me within 6 months.
I’m glad that I took the time to research, compile data, advocate, and find the right doctors who actually cared about patient input. UC Health essentially wrote me off as crazy. Guess what, I’m not. I was right. You should’ve listened. We could’ve fixed this problem sooner before it became the critical mass shitshow of Nov 27th. I’ll say this, I NEVER want to feel like that again. It was terrifying. It was the most scared I’d ever been for my life. I just learned that if that happens again, I’m just going to call 911 and just deal with the $2,000 ambulance bill.
Anies has been my ambulance driver. But it’s unfair to put this on her on a constant basis. Hopefully after this point, we won’t have to deal with this bullshit anymore. I want to be there when she finishes her last 14r. It’s an accomplishment few actually succeed at. But at the same time, it’s the accomplishment of me surviving the medical malpractice of the entire medical community for 5 years, including Mayo
Which funny enough, I emailed the original infectious disease Dr all the findings. Surgical reports, labs, everything.
The next fucking day, Mayo setup 4 telehealth visits. I’m not shocked. But this is just a cover your ass maneuver for them. Because they also don’t listen to me.
So today is a good day. Sarah from the specialty pharmacy called me, and said my Vancomycin will be dropped off around 5pm today, and that the courier will call me around then so he can just hand deliver it to me.
It’s nice for a change to see things going the way it should. Maybe by summer, I’ll be back to “health”, a new normal that’s actually an acceptable normal.
Never stop advocating for your health. It’s your body. You know when things are wrong. Push them for answers. Ask them for a differential diagnosis and why certain symptoms and labs or imaging results aren’t being taken into account.
If they can’t answer those questions, just find another provider.
To date, I’ve “fired” over 14 doctors in a 5 year span. I’m not afraid to find the person that will help.
So for next week, I’ll return to work full time as of 1/16, and work from home 100% of the time until the 31st, then resume my normal work schedule of 3 days in office, 2 days at home.
Both my boss Bob, and Myra from HR have both been my fucking CHAMPIONS when it came to navigating this really fucked up situation. I couldn’t be more appreciative of their efforts, empathy, and patience through this process.
This has been my first positive blog post in a long time, and it feels amazing to share this with all of you.
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