Immunity

Well. ENT visit was productive. I’m fucking tired. My face hurts. Nothing new. As I sat with the ENT’s PA, we picked up where we left off. Talked about the drill bit. Wound up getting more salivary meds and labs. I did get a different kind of prescription. Xhance. Nasal steroid. Reason being when she tried to use the camera in my nose, it barely got through. It was that swollen. That’s been the theme. Inflammation. Pain. God. 

As we drove home I just decided to go get the labs done. Get it off the list. What labs now?  Autoimmune panel. I was kind of relieved it was ran again. In 2019, it was negative. Nothing. I don’t specifically remember why. Results came in. Again I just stared at all the abnormal labs. That same day I went to my immunologist. Talked about the facial inflammation. Swelling. Fuck. Everything. Including my frustration. Got another Xhance spray. Also talked about doing my xolair at home. Might as well. The last part was the SCIg. Currently I inject 150mL of fluid weekly. A bottle of water is 500mL. Yeah. 1/5th of a bottle of water. Weekly. I’ll be honest it’s a lot. I asked to reduce. We cranked my dose through the roof due to all the crazy shit. But now that it’s over (hopefully) I wanted to back down. I’ll be doing about 120’ish mL. It will be nice. 

Results?  Positive for Sjogrens Syndrome and Lupus. Explains more of what’s been happening. The redness on my face comes and goes. The mouth shit. Feeling like I’m 80. Fuck. 

My immunologist needs another visit to discuss our attack plan. At the same time I’ve been referred to a rheumatologist. The pain and swelling got to me today. I had a medrol pack hidden away, I decided to use it. I need a temporary break from this shit. I’m pretty sure I’ll be put on steroids, methotrexate, or plaquinil. 

Just won’t end.