Trying

Guess I can say I’m still trying. Jesus this sucks. The move just was unexpected. Asshole neighbors. Playing music all hours, just disrespectful. The same guy I tried to help. Sorry your wife left you and your son doesn’t want anything to do with you. No wonder they ran away. Dude is an idiot. 

With that behind us, we moved into a different building. Our house is a mess. I’m just exhausted. I could t do much for this move. The pain and sheer exhaustion was unreal. I moved what I could. 

I talked to my immunologist. Was sort of a strange conversation. That he didn’t know why the labs were run, when I had already talked to him last week about it. Not sure. I told him that the steroids are helping. What’s interesting is this weekend we went to get coffee, but I didn’t expect the fire and pain that followed. Holy fuck. I’m allergic to something else. Why in the fuck is this happening. I really don’t understand. 

My mouth continues to hurt. From my cheeks to my chin. It burns when I eat. It’s when my salivary glands are turned on, the pain typically follows 20 minutes after. I don’t get it. Is this really what Sjogrens is all about. I seriously hope that the rheum can do something. I still feel this swelling that comes in goes in my mouth. It follows my jawline. Bilateral. There is no way this is neuro. It’s gotta be something else. Immune or infection related. 

Thursday will be an indicator of where this will go. In the meantime I am waiting for my oral surgeon to call and get my surgery scheduled to get this bone issue fixed in my jaw. My lower teeth don’t fit at all. I almost wonder if that lump / hardness I feel is related to the pain that is all over. What if this is a failed bone graft?