Category: CVID

Left Ear is super painful. Started 2 weeks ago. Before that? 2 months ago same thing, went away, but told myself to go to Dr. Lupo IF it happens again. Everyone sounds like a robot. My lows are gone and it hurts, my mids are “ok”, however, the highs squeal and everyone sounds like EVE… Continue reading Left Ear

Seems like I used to blog a lot. Back then, it’s what helped get out what was going on. I’ll be honest, from 2017 until 2025, it’s been one fucked up wild ride. Something you just can’t make up. The amount of trauma I’ve sustained over the past few years has been to put it… Continue reading It’s Been Awhile

What should start off as a positive post about everything is better, why I haven’t been posting or writing. I’m just defeated. Tired. The daily pain I feel in my face, mouth, and now sinuses has worn out its welcome. Yup. I said it. What feels like lock jaw has started to get worse every… Continue reading It’s been a minute

The last 2 days have really been hitting me hard. One year ago, I suffered a STEMI heart attack. The arteries that feed my heart were 95% blocked. I survived probably one of the worse types of heart attacks you can have, they don’t call it the widowmaker for nothing. I still remember the weeks… Continue reading 1 Year Later ….

As I was driving home from my Dr visit this week, I got a surprise email. The attorneys that got us out of the lease, contacted me, letting me know that they would be taking on the other portion of the case between me and Parc. They were able to find a medical professional who… Continue reading Legal Update

Can’t begin this post without talking about post-Mayo. This morning I woke up to an email from Dr. Joshi requesting that I come off all antifungals, and that everything seems to be ok. More on that later. Yesterday, I was able to re-establish care with Dr. Hepworth’s office. It’s been 6 months since he split… Continue reading Reunited with Hepworth and Updates

The unexpected turn of staying an extra 2 days was a surprise. Dr. Joshi was well worth the visit in the first place. I still can’t believe she got me in front of everyone so quickly. For starters before I go into it, when we rebook our room at the Kahler, we moved to a… Continue reading Heading Back from Mayo

This morning started off early already. They pulled quite a bit of blood from me this morning. Looking at the screen, Dr. Joshi ordered a lot of stuff. Some of it was immune related, but she already had the genetics labs pulled. My next appointment with ENT (Ear, Nose, Throat) is this afternoon at 2pm.… Continue reading Vampires Strike

Well. I don’t know where to begin this blog post. Firstly. That drive was the absolute worst. It definitely took its toll on both Aggie and me. She slept almost all day yesterday. We talked in the morning, trying to figure out where to eat, plan of attack for today. Soon after we figured out… Continue reading Answers… and Hope

Time flies when you’re not having fun. To piggyback off of my last post, my face continues to hurt, and my neck. Ever since my heart attack my back has not felt right. At all. Way at the bottom. It was always aching. Well this past month, things changed. Pain started to radiate towards my… Continue reading Lots of Updates