Category: CVID

Well. Progress is progress. Moving in the right direction for once. The proverbial downward spiral of the last 5 years seems to have stopped. Over the weekend I had a near-anaphylactic reaction to Starbucks. Everything hurt. Burned. My tongue was black. Again. Which got me to think about what I’m doing wrong. It’s the amount… Continue reading Slow Progess

Been a long hectic week so apologies for no updates. I did get my labs back from my past IVIg therapy, and my WBC’s have shot from 9 back to 16.7. I’d really love to know what’s doing this. I really would. At this point I have no idea what’s doing it. I did see… Continue reading Labs 🙁

Well here I am. At 8:40pm. Reading up on shingles. Which antiviral to take, and when. I’ve been religiously taking 1500mg of famcilovir 3x a day (500mg each time) daily for 3 days. This afternoon, I started to get itchy. I mean burning itchy. That’s when I realized this is something else. After I came… Continue reading The Outbreak Continues

The past 3 weeks has been a wild one. From my previous posts you’d know exactly what I’m talking about. Saturday morning was ketamine. I wanted to make sure up up early enough to get a dose of Dilaudid started before the session. Typically I’m asked to hold it 4 hours prior. Saturdays session isn’t… Continue reading Up Early

I’ve been up half of the night. Yeah, took my normal meds at 9:30pm last night. But my body has just been .. off. Between my face/mouth hurting, and the random body lockups (yay charliehorses), and just my body just not wanting to rest has me all backwards again. Last week I was off from… Continue reading More Exhaustion

Sorry for being off the air for so long. The past 7 weeks have been extremely busy. I apologize in advance, this will be a LENGTHY post. A lot of good, not so good, and terrible things have happened since my last post before the blog decided to kill itself. The home hosting stuff I… Continue reading Officially Back Online!

Sorry for the technical issues. But the Blog is back online.

Posts are broken for now. Will figure out how to fix. Sorry!

Since my last post, things have been so hyper busy at work. I will say this, I’m glad to be back doing what I love again. To start off. Infectious disease has been officially removed from the picture. Dr. Hepworth my ENT is taking over the management of the infection, and all medications surrounding it.… Continue reading Extensive, but Good Updates