Category: Uncategorized

So just to get this out there so it’s documented, and that everyone just keeps up to date on me just continuously proving to these doctors that they are continuing to create a potentially bad situation by not reacting, labs have already resulted from yesterday. They clearly don’t pay attention to the data I constantly… Continue reading Labs Already Back and More Rude Awakenings

Stemming from my conversation with Dr. Kaufman on Wednesday, she was able to make positive contact with Dr. Hepworth to formulate a game plan. I was contacted today by her office that Dr. Hepworth’s office will contact me for cultures to be taken from my sphenoid. Once that is done, Infectious Disease will place me… Continue reading Forward Motion

God I really hated putting that as the title. Still dealing with problems. My head still hurts. My ears hurt. My throat hurts. Between the back of my eyes, hurts. The only good thing is, is that the scan worked. Here’s what they found: LEUKOCYTE SCINTIGRAPHY (SPECT/CT, LOCALIZATION OF INFLAMMATORY PROCESS) EXAM DATE AND TIME:… Continue reading Scan Worked and Continued Problems

It’s almost been 2 months since we evacuated a life threatening place. Parc created a very unhealthy, unsafe, and simply put, a dangerous life-threatening situation that if we didn’t act, it would’ve most likely taken my life. The symptoms we all experienced while living in that hazard were worsening every day we occupied it. From… Continue reading Clean Living

I’m now wide awake at 2:30am, Venus started heaving. If you’re a cat owner, and you hear that sound, she’s gonna throw up. I shot up out of bed and tried to get Venus out of the bedroom so she would be on the hardwood flooring so it would be easier to clean up. She… Continue reading Not a Fun Night

Yesterday started off rough. I woke up at 7am, but as I sat up, my body quickly reminded me that “hey psssst here’s some pain”. It took a lot for me to get to my own two feet. The radiation from yesterday definitely contributed to how I felt in general. 2nd scan was fine, took… Continue reading Scans complete and Release

Well. It’s been a very long day. I got to Swedish right at 8:15am, got checked in. Got my arm band. Then headed up to nuclear medicine. Waiting room was just full. So I stood against the wall away from everyone. Shortly after I was called back. After a few verifications, I had my port… Continue reading The Scanning Round 1

Tomorrow is a big day. The 111-Indium Tagged WBC scan. Yes they are going to draw a lot of blood, as to how much? I have no idea. For the next 48 hours though, I won’t be able to use my steroid dental paste that I’ve been relying on to help with the mouth stuff… Continue reading Nervous About Tomorrow

As time has gone on since the sinus surgery of last year, I’ve learned so much in a short amount of time. In short, mycotoxins can fuck you up. Immunodeficiency? Amplified by 100. Genetic predisposition? Amplified by 100 again. The issues I’ve dealt with over the past 3-5 years can easily be summed up to… Continue reading Mycotoxins, CIRS and Anger

Dr. Divekar. The immunologist who originally diagnosed me with CVID after I was consistently ignored by UC Health. He was the one that finished what UC Health started. He was the one who wrote the need for IVIg letter. To only be ignored by UC Health, and told “I’m just dehydrated”. Finding Dr. Sarid was… Continue reading One of My Guardian Angels