Category: Uncategorized

As much as I wanted the mastoidectomy to solve everything, it hasn’t. Last weekend more pus has started to come out of the left ear and my face. It just burns. I wake up hourly now. I keep getting weird temperature spikes. The pus is the same consistency. Yellow, chalky consistency. Luckily Dr Lupo got… Continue reading Going Back The Other Way

The end of this week wasn’t ideally what I was thinking was going to happen with Hepworth. Got the call from his surgery scheduler… October 25th. Are you fucking serious almost came out of my mouth. She knew I was livid. She only made it worse by saying “Try to stay calm”. Listen. I’ve been… Continue reading Another Sleepless Night

Last Monday came. No calls from the ENT’s office. So Tuesday morning I called. About 2 hours later I get a call back. To my non-surprise, of course nothing has gotten anywhere. I began to tell her that if they cannot coordinate by the end of the week that the surgeries/procedures that Hepworth needs to… Continue reading Still Waiting

In the beginning I started out on Octagam 10%. 40g. Infusions took forever. Fastest they would let me go was 200mL/h. It was an all day affair. Sitting in the infusion center. Tick tock. 7 hours to get it done. As time progressed I started asking them to up the rate. Finally one day, one… Continue reading IVIG vs SCIG

Since the end of May I’ve been in limbo. Yes. I got the mastoidectomy. Yes. Infectious disease did their part. I’m still waiting for surgery #2 that needs to happen yesterday. At the tail end of June, I saw 2 oral surgeons who seemed reluctant that there was any need to do surgery. From what… Continue reading Limbo

I’ve spent the past month moving my website & blog. But forgot to update the blog since I took it offline. Time to brush off my html skills and write my main website since I have to occupy my mind until surgery.

Since 2015, things have just slowly deteriorated to the point of where I am at today. Last year after getting COVID, really put the pressure on. As I sat at PSL, I pled again to infectious disease to only be treated as a crazy lunatic. It’s quite sad how the American medical system treats patients… Continue reading When Does This All End?

Sorry for being off air for so long. A whirlwind of shit has come my way since the last post. I’ll post a very long and meaningful update when I have time to. I’m still here.

               SWEDISH MEDICAL CENTER                             501 EAST HAMPDEN AVENUE                             ENGLEWOOD CO  80113 PATIENT NAME:    ZOUBEK,JOHN ROBERT   REPORT#:0601-0177REPORT STATUS: Signed ATTENDING PHY:  Pazurek,Anna Maria  MD                                    OPERATIVE REPORT CC:   ROCKY MOUNTAIN EAR CENTER    Christopher M Courtney, MD    Edward J Hepworth, MD Patient Name:  ZOUBEK, JOHN ROBERT Date of Surgery:  06/01/2023 SURGEON:  James Eric Lupo, MD… Continue reading Mastoidectomy #2

Today is worse than yesterday. It’s literally 10 minutes after antibiotics and I’m just trashed. Everything hurts. Just feels like I’ve been ignored for way too long. Nobody listened. They would rather mark me off as being crazy rather than help. Or at least try to get me in the direction I need to go.… Continue reading Round 2