As much as I wanted the mastoidectomy to solve everything, it hasn’t. Last weekend more pus has started to come out of the left ear and my face. It just burns. I wake up hourly now. I keep getting weird temperature spikes. The pus is the same consistency. Yellow, chalky consistency.
Luckily Dr Lupo got me in immediately Monday. He did pull some stuff out of my left ear and definitely noticed the swelling around the front portion of my ear and face. Over the weekend another abscess opened up and just emptied, I was so pissed that I didn’t have any culture sticks left.
So as I sat and discussed what’s going on with Lupo, I asked him to talk directly to Hepworth to help advocate that this cannot wait until October. I’m sorry but the infection is just going to push it’s way back there again, and I’m NOT going to go through a 3rd mastoidectomy because some surgery scheduler feels that this can wait. The ringing is back again in my left ear. I haven’t started feeling the sloshing yet, but I’m sure that will return soon if this isn’t resolved. I also told Lupo that we need to put me back on IV antibiotics. The augmentin/doxy is NOT the way to manage this right now. I don’t need a fucking PHD to know this.
If it was working my face would be calming down. I’d be taking less Dilaudid. It’s called clinically improving. To which I’m NOT. I fucking swear if ID doesn’t listen to me next week, I’m going to become more verbal.
Lupo said he would make detailed notes for ID and also talk to Hepworth. I know he’s busy, but Jesus. One can only hope someone cancels surgery. And that the surgery scheduler is actually doing her job for once. At the end, he agreed to order another CT of the Mastoid to make absolutely sure the wall is closed.
Today I went and got the CT done. It was different this time. Usually it’s just lay flat, in and out in 5 minutes. This time I had to do multiple angles. So I guess that’s a good thing.
Yesterday my IVIG was approved, and Swedish literally just called me as I was writing this that my port will be placed on Monday.
Progress I guess. I just wish it was the face surgery. I just want this over with.
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