It started last week. Subtle, but something was starting. Something I haven’t experienced in a very long time. An old friend was slowly returning. When I was a teenager, I used to get cold sores constantly. Back then though, they didn’t have the antivirals we have today. Whether being on my inside of my lip,… Continue reading Worst Outbreak of My Life
Quick Update on Where We are at Dr-Wise
The sphenoid infection is getting worse. Last WBC was 17. Today I met with my immunologist and spoke to him about 4 topics: As we talked, he just listens. Provides active feedback. My IVIg dose is increasing to 55g. Staying on Xolair. Brought up the fact Dr. Kaufman has been trying to actively contact Dr… Continue reading Quick Update on Where We are at Dr-Wise
The Weirdest Dr. Visit I’ve Had to Date
2 weeks ago, my WBC was trending downward. When I met with Kaufman, I made it clear to her that the antibiotics do not seem to be helping me. Normally with IV medications, roughly by the 2nd day, you start to feel some level of relief. That wasn’t the case. Between the tough IV Meropenem… Continue reading The Weirdest Dr. Visit I’ve Had to Date
Untitled
Describe the most ambitious DIY project you’ve ever taken on. My college final. At the beginning of our final semester, teacher assigned finals to each student. You could select any project you wanted. Most students were doing pre-built electronics kits from Radio Shack (yes you know how old I am now). AM/FM radio’s were really… Continue reading Untitled
It’s Ketamine Day!
Every 3 weeks, it’s the day I look forward to most. Calming the chaos. Resetting my mind. Allowing the pain medications to work better. Each session brings me closer to “sanity”. Since 2020, I was called crazy. That I was attention seeking. That I was drumming up and weaving this big lie. Not only did… Continue reading It’s Ketamine Day!
Total Surprise
Well the labs that were pulled yesterday actually showed that my WBC and inflammation markers came down. I immediately called infectious disease back and told them well, if that’s happening, the antibiotics are doing something. So I ran back to infectious disease, got the antibiotics, got my port accessed and I was out the door.… Continue reading Total Surprise
Pushing for Surgery
Today I woke up late. The Meropenem schedule honestly is fucking killing me. Every 8 hours. 6am/2pm/10pm. In the past week I’ve averaged 5-6 hours of sleep per day. And it’s starting to catch up to me. I’m. Exhausted. After getting the last dose of Meropenem this morning in, I pulled my port needle. Looked… Continue reading Pushing for Surgery
Small Legal Update
Spoke with the attorney handling the tenant/lease portion of the case, and both Anies and I are out of the apartments legal binding they had on us with the lease. We were able to deposit the security deposit check today. The next phase, of course is the personal injury aspect of this case. The attorney… Continue reading Small Legal Update
Opened the Blog Back Up and More Contamination
Since it’s going to be public knowledge to them soon, I don’t feel it’s necessary to keep it locked down anymore. The property did send us a check for $1,800 for “Security Deposit Refund”. Cashing this won’t constitute any type of settlement since we didn’t sign a release. You can reach the blog again by… Continue reading Opened the Blog Back Up and More Contamination
The Financial Impact of Chronic Illness and the Fallout of Moving to a Safe Environment
Full transparency, I’m currently $57,499.49 in deep medical debt. 95% of this debt, is the direct result of the long-term mold exposure we endured since 2017. This is all the medical costs I’ve had to cover since 2018 until present. When we discovered the mold issues. I had previously paid this card off which held… Continue reading The Financial Impact of Chronic Illness and the Fallout of Moving to a Safe Environment