As I woke up this morning, the usual morning email came in from LabCorp for labs that were drawn yesterday at infectious disease. Unfortunately, my WBC has gone back up again. Two weeks prior, I was at 16.1, last week, 11.3, but as of yesterday, back up to 15.3.
I feel like shit. I’ll be honest. Whatever we gotta do to get my counts under control, I’m willing to do. I’m pretty sure being back in the apartment is contributing to it. I’m almost convinced it’s that. This morning, Walgreens called saying that insurance finally approved the Posaconazole, so at least infectious disease is listening to me.
I stopped by to pick it up, as well as more Lovenox shots. I’ll see Dr Chauhan Monday, so hopefully he will be managing all the meds for my heart & the clots. I’m running out of meds, but have enough until late next week.
I’m getting pretty concerned that my WBC is out of control. When I left Swedish I was 8.1, which was a good thing. The only 2 variables there though, was I was on posaconazole, and I wasn’t in this hazardous apartment. So if the posaconazole doesn’t help stabilize this, or help me feel better, I’m going to have to find us a new place to live ASAP.
The mouth, neck, face, and sinus pain was pretty bad this morning. It’s just not getting better, and I’m tired of the rollercoaster I’ve been on for 3+ years. My patience is all but gone with respect to it. I’m frustrated till no end. Since I was released from the hospital, the pain has slowly returned, on top of the weird red spots all over my head, and the urge to itch is close to being unavoidable.
Sedgwick called me later in the day yesterday, letting me know that FMLA was approved, and that they were sending the STD paperwork. So I got an appointment with Dr. Courtney at 3:45pm Monday to have him fill out more paperwork (unfortunately). So at least Sedgwick is doing their job finally, it’s just frustrating to deal with them. But again, I have to keep playing these games to get what I need, I’m just tired of it all together. Maybe by Friday, everything will be approved, and that takes a somewhat large weight off of my shoulders. As I understand it, my FMLA can go through Jan 3rd 2024. I’m hoping that I can get this clownfiesta of a problem fixed well before that. I am hoping that I can return to work on the 27th, but largely what the cardiologist says, on top of where/what the fuck my WBC is doing, will gauge if I need more time.
Again, 1 day at a time. As stressful as all of this is, I’m trying to keep the stress to a minimum. As hard as this is, I just need to minimize everything as much as I can. I need to keep my heart calm, I need to stay calm. I’m just hoping a lot of this shit just stops, or minimizes.
I have a consultation with an attorney Monday, and I’ll see where we can go with this, and what he thinks they can do. All I know is that what I’ve gone through isn’t right. I hope I can walk away with our health intact #1, #2 find a safe place to live, and #3, recoup my expenses the past 3 years for this literal nightmare this apartment has created for us.
The shit sandwich part about this whole deal is this… I shouldn’t have to be dealing with all this all at once. I find it extremely troubling that the mold has been the driving factor from a silent perspective. Nobody really even thought of it. Being pushed to my mental limits where they would consider me a drug seeker, someone who’s crazy, that I am making all this up, that I’m attention seeking. I’m really glad that the sinus surgery from October finally through out what I think is the final piece of the puzzle.
I’m glad that once the pathology came back indicating mold, the first thing that fired into my head was “is the apartment the source?”. I mean it’s gotta come from somewhere. I’m really thankful for the first environmental group that came. The honesty that guy exuded really told me that I am doing the right things. With the property doing their “mold remediation”, sending in a crew of people that NONE OF THEM WERE WEARING RESPIRATORS. This should be really the first huge red flag of this whole ordeal. The second huge red flag, is the fact that the property SWITCHED the environmental company with some bullshit excuse. The difference between the detail of the two reports that was generated, I could easily tell there is some fuckery going on.
So I ended up calling envirospec back. Unfortunately the scheduler is gone for the weekend, but I talked to one of the other people. It’s $350 for them to come out, $65 per test. I definitely want the same spots tested for consistency, but I want to add a test on the patio, and in our bedroom. I’m fucking almost convinced the property by not sending the property team to fix the mold, probably spread it and made it worse.
There is a reason why my lungs, face, mouth… burn. I was out of the house since 11 today, and I felt ok. But since I got home, it just picks back up again. After talking to the guy from Envirospec, my suspicions almost seem more sound. I wouldn’t put it past the property to try and “hide” what they did. You’d think if it was done properly, that they would use the same company for consistency sake. The bullshit of “we switched vendors” excuse isn’t cutting it with me.
Hopefully I can get them back out next week, and just get rapid results back. Because if what I think, the results are going to come back different that the other companies. This will be EXTREMELY important when it comes to the legal perspective. Yeah, it’s gonna cost $500+. But you know what? I feel it’s important to do this on several levels.
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