Day 3

Still had a tough time sleeping last night. This port needle needs to get swapped for a shorter one asap. It’s just irritating. And annoying.

The antibiotics seem to be working, my face has shrunk considerably. The cysts in my face and mouth seem smaller, the lumps under my tongue seem to be smaller. In short, I’m de-blimping.

My nurse from anthem called today. Spot with her for a good while, updating her on what’s going on. I did express extreme concern over how CVS/Caremark continues to deny any new medication I need. She started to mention “the computer suggested something different”. I lost it. If a prescribing physician is sending in a certain prescription, why the fuck is a computer delegating how healthcare is done. Someone please tell me. Honestly. Has insurance companies slunk that low? Replacing people who would normally approve, with a machine that just defaults to deny?

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I scheduled my follow up with Dr. Chauhan, I’ll see him on the 18th of this month. Coming up next week is pain management. I have a standing appointment with infectious disease through next year, every Thursday. For labs, port needle change, and just updating the nurse practitioner on progress. Technically, I’ve had a week of Vancomycin. It is working. I do feel somewhat better. It’s just stupid it took me getting a heart attack for them to finally listen. Thank you Dr Chauhan.

Ketamine was moved to the 30th. It’s a bit of a wait, but hopefully nothing more stops me from getting back on track.

Still haven’t heard anything back from Sedgwick regarding my STD. Just typical slow shit from them. It’s just frustrating. I sent in everything. Shouldn’t be that hard to just approve it, and move on.

My body does feel like it’s still coming down from the high alert status it’s been stuck in. It’s crazy to think I’ve just rolled with this for as long as I did, but did I really have a choice? I can assure you there wasn’t. And it’s not like I didn’t try to get help.

At least the shortness of breath that I’ve been experiencing these past few months is gone. That was one of the scariest feelings. Having to stop constantly to catch my breath. Yeah, I’ve been sick, I haven’t been able to attain any level of activity for god I can’t remember, but it’s not because I was out of shape. Going up 3 flights of stairs was enough to just fall over. Almost considered getting one of those stair chairs like in Gremlins. I would 10/10 enjoy just getting shot out a staircase.

I’m still pretty tired though. Again it’s just due to my body recovering from what it’s been dealing with. On top of the limited / broken amount of sleep that I am getting. At least with this week I don’t have to do much. So I can just relax, and take it easy.

I did venture out today to pick up the baby aspirin. It was nice to just get a small break in scenery. Although my right wrist still hurts. I keep forgetting to not use my right hand as much as possible. Would’ve been easier having my left arm be the one, but at this point, I’ll take not having to deal with what I was in exchange for a little wrist pain. Hopefully tomorrow I get the call from Walgreens that the poconazole is ready for pickup. I just want to make sure this time I have is used optimally. And not squandered by delays.

Lastly, the property called. Still no report from the work they did to try and reduce the amount of mold in the apartment. Judging by the fact that this crew was supposed to be a “mold remediation” company, none of them wore respirators. So this leads me think that they halfassed the job. So I’m not surprised there. She did call to ask if a different building that has no known water damage issues would be better than the other. I immediately agreed. I told her to do the same as the other apartment. Once the apartment is available, to send over the environmental team to that apartment and test it so we can start getting ahead of this. This isn’t a choice time to be moving, but we really don’t have a choice. Currently we are booked at the hotel until the 8th, but I’m sure that this will be a longer affair so that the property can guarantee us we will all be safe in our home.

Time will tell how all this comes together, I just hope this is the last of the hospital shit. It’s gotten extremely old. I can’t wait for the time when I can use my vacation time for exactly that. Vacation. Going out and doing something other than the 2 options I’ve had before, work, and hospitals. Maybe we can finally start to go on the adventures we started doing back in 2016.