As last night came to a close, I didn’t feel right. The strange feelings in my mouth have fully returned but in a different way. The roof of my mouth felt numb last night, I couldn’t put my finger on it, but today, it’s pretty clear why it was.
From what I can feel, along the roof of my mouth, and also along side the maxilla portion of my skull, I feel these bumps. They are soft, and palpable. I can feel and see a tunnel of something pushing through. It hasn’t surfaced yet, but I can feel it coming. Honestly it’s a disgusting feeling. I’ve been taking pictures of it to document the process, as I know that these are the things the doctors are ignoring, but I’m documenting it for my own sanity.
It’s almost like the more I fight this with antifungals and herbals, the more it rears its ugly head. It’s been there for awhile. I would feel this every day, more or less a sleeping giant. What I notice thought, is that the more I treat this, the more it fights for the home it’s made in my sinuses, face, neck, and mouth. The pain I’m experiencing is on a whole other level. I’ll be honest. I haven’t felt this type of pain in a long time. My throat feels weird again. Reminiscent of the swallowing problems I was having in 2016 when we moved here to CO. It feels like it’s everywhere in my mouth at this point.
I know if I go into, the ER, they will just look at me like I’m crazy. But I have a serious suspicion, that this is just the beginning of the detox mass exodus that seems to be happening. I was able to blow some junk of of my sinuses this morning. It was brownish and spots of blood.
All I know is that I don’t accept this as normal. I won’t allow them to just tell me this is a “neuralgia” or “immune-related” when I know for goddamn sure, that’s just as safe and easy cop out. That’s the other thing I’m tired of hearing, is the same generic excuse doctors use when they don’t want to deal with these problems. “You’re a complex case”. Yes. No shit. It gets more and more complex the more you delay and gaslight me away from a real treatment plan.
That’s how I got to where I am now. Doctors not doing their jobs. Refusing to look at the actual physical proof of what this is, and where this is. The longer this goes, the worse it’s gotten. The sinus surgery definitely took away some of the issues I was dealing with, but I’m still left with dealing with the remaining issues.
I’m hoping that the voriconazole is the best thing I can be doing for this. It has made a positive impact, I do feel better while I’ve been on it. But it’s unclear what infectious disease wants to do. Monday I had 2 appointments. 1 with Sarid, and 1 with Naylor.
From an immunologist perspective I need him to understand that this “unknown” thing that he’s seen me deal with, is now known. I need him to help my immune system anyway he can from a fungal infection perspective. From what I’ve researched, there isn’t a biologic that I could have that would help. I’m already doing the 2 things he would recommend anyway. IVIg and Xolair. But at least from this point going forward, he can help me advocate to the other doctors that I do need medication. Whatever that entails and however long I need to take them for. Sarid will at least give me a game plan, whereas others just dangle the carrot.
For Dr Naylor, I will most likely need him to take the treatment of this fucking evil from infectious disease. He understands that if we can fix the cause, we fix the effect. It’s a better approach to this. That’s how this should be anyway. I’m pretty sure from Naylors approach, it will be very similar to what I’m doing now. I just need a solid detox plan. Mixed with the right amount of antifungal, and herbal support. Since Hepworth got me what we needed, I’m sure the discussion will include the MARCoNS treatment we did discuss previously, it’s just that the Lyme kinda took center stage.
Infectious disease just seems that they are just going to do x. When I need xyz. Since their past behavior was dump me asap, it’s no doubt as to that’s why I feel they will do just the same with this.
Tonight I did my “spa night”. Nothing fancy. No candles. But for those of you that want to know the recipes of the things I’m trying, here it is.
For starters with my face. I do a bentonite clay mask. This is mixed with 2-3 tsp of water, 3/4 tsp of bentonite clay, and about 10 drops of tea tree oil. Mix all of the contents in a small mixing bowl, and use a small spatula to really work everything together. After that you should have a very paste like substance. For me, I just do my entire face. I’ll start with 1 thin coat of paste across my entire face, 2nd coat is much thicker across my whole face, and 3rd coat, I cake on the paste in the areas that I feel need it. I’ve done this mask in the past and it’s done wonders. From a time perspective, I typically just let the mask sit for 30’ish minutes, or until i cant stand the burning anymore. Just be mindful during application, don’t get this stuff in your eyes, and avoid the space between your nose and upper lip. Simply because those mucous membranes are a bit sensitive, and if anyone has used tea tree oil before, that shit burns if it goes in the wrong spot.
Secondly I do a detox bath. Which consists of you guessed it, hot water, about 1-2 cups of epsom salt, a good squeeze of hydrogen peroxide (get a big bottle of it), about 20 drops of tea tree oil, and 3-4 dandelion tea bags. Draw the bath and start throwing the contents in when the bath is about 1/4’th full. Watch the water temps, you don’t want to jump into scalding water. With that hop in, and try to submerge all the parts. As for time, I typically just sit in it until the water gets cold enough.
So mask on, bath drawn, jump in and feel the burn. About 5 minutes into the mask, my face started to crawl. Burn. Itch. From the bath I could immediately feel the epsom salt start to get drawn into all my muscles. I can definitely say my body probably needed the magnesium just based off all the muscle spasms I’ve been getting this last week.
I try to do this “spa day” at least once a week, but as of late, I’ve either been too busy, or just ran out of time. It’s a good solid 30-60 minute investment into just helping your body recoup, or let it relax. The goal is to try and detox your body via your skin, it is your biggest organ, and it can absorb things that help. Afterwards, using a good charcoal cleanser helps clean off the clay, but also helps work in the charcoal. Theres something about charcoal and bentonite clay, I guess you could call it magic.
So if you need to relax, have a good non-antibiotic approach to skin care, or just general care, give that a shot. It may feel weird in the beginning, but if you do the mask 2-3 times a week at least, you’ll start to see clearer skin, open pores.
As for how I feel now, my head hurts. My ears have been hurting for mostly the whole day, my face, cheeks, neck and mouth have all been extremely inflamed all day. I hope it’s really just a sign of the mycotoxins making their exodus from the home they’ve made, but only time will tell. I just hope this calms down soon, it just sucks.
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